by Estela Lugo | Nov 1, 2018 | Advocacy
HNF was honored to be chosen by the Child Neurology Foundation as the one of 11 advocacy groups.
by Tina | Jan 25, 2018 | Advocacy
HNF proudly stands with the chronic pain community in protecting access to therapies and treatments.
by Courtney | Feb 27, 2017 | Advocacy, Featured
Join HNF for Rare Disease Week via Live Streaming Video Access to reliable and current health and wellness information has just gotten easier. HNF is excited to use this new broadcast network during Rare Disease Week in Washington, DC. ZubiaLive is a health and...
by Allison Moore | Sep 25, 2015 | Advocacy, Featured
I met New York Senator Kirsten E. Gillibrand at an event in NYC two years ago. Impressed with her history of advocacy, I reached out to the Senator about The Hereditary Neuropathy Foundation and our ongoing efforts to find a cure for Charcot-Marie-Tooth disease....
by Keri Calandro | May 8, 2013 | Advocacy
Canine Companions for Independence (CCI) has provided trained assistance dogs for children and adults with disabilities since 1975. The world’s largest assistance dog organization, CCI has placed over 4,000 dogs to date. We spoke with Katie Malatino, Public...
by Courtney | Apr 1, 2013 | Advocacy
Meet Abby Ziff, Sales Director, Strategic Accounts, WebMD. CMT advocate who is passionate and dedicated to helping all of us in our mission to bring awareness and raise funds to cure CMT. You don’t have CMT nor does anyone in your family so why are you such a...
by Courtney | Dec 12, 2012 | Advocacy
HNF recently signed on to a coalition letter, which included 98 other organizations, to urge reconsideration of cuts to Medicaid/Medicare reimbursement for EDX procedures. tests which are critical for early diagnosis of Charcot-Marie-Tooth. It’s time to act! We need...
by carol | Nov 21, 2011 | Advocacy
Join our most recent efforts and help gear up for CMT Awareness Month, September 2011! Just recently, the New York state legislature passed a resolution memorializing NY Governor Andrew Cuomo to declare this September as CMT Awareness month in the state of New York....
