Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.
Blog Category
Bracing
Total posts in Category: 11
Introducing the New Helios GX with Monica Tullar
The Helios GX had Monica walking faster, with stability, comfort, and that extra spring to support her as she manages her CMT.
Rare Neurological Disease Special Report Features CMT and HNF!
ust released, the third annual Rare Neurological Disease Special Report has CMT taking a front-row position with several articles discussing the latest developments in CMT treatments and improving CMT care.
Two New Charcot-Marie-Tooth (CMT) Surveys Regarding Orthotics Use and Autonomic Neuropathy Prevalence
Two New Charcot-Marie-Tooth (CMT) Surveys Regarding Orthotics Use and Autonomic Neuropathy Prevalence
Do You Need Ideas For Shoes To Accommodate Your Braces?
Do you have difficulty finding stylish shoes other than sneakers that accommodate your braces?...
Leg Braces, AFOs & CMT: Finding the Right Fit
Has the time come for leg braces? If so, there are a lot of options to find the right brace for...
Helios Leg Braces for CMT Patients
Leg braces for CMT help support and hold a part of the body compromised by muscle weakness, muscular atrophy, and sensory impairment.
Bracing for Helios
Lori didn’t plan to visit casinos or nightclubs during her trip to Las Vegas, Nevada in October. ...
Mixed Martial Arts and Charcot-Marie-Tooth
Learn how this CMT patient adapted his Mixed Martial Arts training to his disability.
Top Pedorthic Experts Answer your Questions about CMT and Footwear
Foot abnormalities and difficulty walking are common problems for people with CMT. Having the right shoes can make a huge difference!
Embrace the Brace: A Mother’s Perspective on Helios
We had the highest of hopes that these custom braces would be the difference between night and day for Dakota.
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Webinars – Inspire Community (1)
Webinars – Legal Rights and Benefits (3)
Webinars – Newly Diagnosed (2)
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Webinars – Pain (5)
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Webinars – PT and Exercise (9)
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Webinars – Surgery (2)
Webinars – Telemedicine (1)
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Faces of CMT – Bernadette (9)
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Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (28)
GRIN Patient Registry (39)
HNF Team (10)
Industry (3)
Living with CMT (78)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (4)
Clinical Trials (19)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (7)
Nutrition (3)
Occupational Thearpy (2)
Pain (8)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (29)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (25)
TRIAD – Clinical Trial Readiness (3)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (10)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (21)
CMT Type – CMT1B (1)
CMT Type – CMT1X (2)
CMT Type – CMT2A (8)
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CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (3)
Ways to Give (4)
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