Learn how this CMT1A patient uses the AlterG treadmill to manage her CMT symptoms.
Join Team CMT and be part of an international effort to change the future for those living with CMT!
Join this exclusive research study for people with CMT featuring the AlterG anti-gravity treadmill.
Patient Worthy is having a personal essay contest for a rare patient, caregiver or support person who hopes to attend the Set Sail for CMT Event on June 17th in New York City.
a new partnership with The Mighty
The National Organization for Rare Diseases has awarded HNF funding to build a robust natural history study to support the second most common type of CMT called hereditary neuropathy pressure palsies (HNPP).
Invitae, A Genetic Information Company, Acquires AltaVoice, HNF’s Global Registry for Inherited Neuropathies (GRIN) Platform Host
Q&A with Dave Washabaugh
HNF has launched a new Patient-Reported Research Study to advance therapies for CMT and inherited neuropathies (IN) in an effort to collect comprehensive data for a better understanding of the disease.
Living with CMT can be a challenging journey. Here are some helpful tips.
New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy
HNF’s initial gene therapy work will focus on CMT type 6, which is caused by a recessive mutation in the C12orf65 gene and is currently no treatment.
ust released, the third annual Rare Neurological Disease Special Report has CMT taking a front-row position with several articles discussing the latest developments in CMT treatments and improving CMT care.