🩸2026 CMT Biobank Dates + Cities Are Here!
The CMT Biobank continues to drive critical research forward — and we’re excited to announce our 2026 collection dates and cities.
Are we coming to a city near you?
HNF is seeking individuals with a CMT diagnosis to participate in the CMT Biobank. By donating a small blood sample and allowing your de-identified GRIN data to be shared, you’ll help researchers:
Develop cell models for all CMT subtypes
Advance therapeutic targets
Identify important CMT biomarkers
Participation is simple — and there is no cost to participate.
Our partner, COMBINEDBrain, will be collecting samples at the following locations. You may visit ANY of these cities.
Interested in Participating in CMT Research?
Who
Anyone diagnosed (via EMG or genetic test) with Charcot-Marie-Tooth.
We also need a small number of non-affected sibling controls.
What
COMBINEDBrain and HNF will collect a small blood sample to be stored in the CMT Biobank, supporting biomarker projects and other GRIN Advisory Council-approved research.
2026 CMT Biobank Collection Cities & Dates
Ann Arbor, MI — June 27–28
Asheville, NC — July 14–15
Austin, TX — November 7
Bethesda, MD — July 20
Boston, MA — June 27–28
Boston, MA — Date TBD
Cambridge, MA — July 18
Concord, NC — June 24–25
Denver, CO — June 13–14
Denver, CO — December 3–4
Ellicott City, MD — April 16–17 (HNF Summit)
Galveston, TX — July 20–21
Orlando, FL — April 9–10
Philadelphia, PA — July 17–18
Philadelphia, PA — October 9–10
San Antonio, TX — March 19–20
How to Participate
Simply complete the interest form and select the location closest to you.
Your participation helps accelerate research for all CMT subtypes — and brings us closer to meaningful treatments.
Fill out the form below today and join us in advancing CMT research.
2 gene mutations confirmed as pathogenic/Heterozygous. EMG confirmed + nerve evaluation through skin punch biopsy. Fig4 c.122t>c and MCM3AP c.112_113del I so want to donate blood, saliva and tissue samples for research.