CMT has been an unexposed disease for many decades, but HNF’s mission is to change that. For over 9 years, HNF has been connecting to Neurologists at important meetings.
Start the New Year by getting involved and helping HNF conquer CMT. There are many ways you can get involved.
Meet Lainie Ishbia who created Trend-ABLE to empower women with invisible physical disabilities and challenges.
We are excited to announce our new collaboration with Rare Disease Report (RDR) to increase awareness of Charcot-Marie-Tooth (CMT) among the medical community. RDR’s website, e-newsletter, and print publication offers an independent voice for the Rare Disease Community.
HNF’s CSO (Chief Scientific Officer), Sean Ekins wrote a blog about his work with Allison Moore and her two “fighter Mom” friends Lori Sames and Jill Wood. He named his blog: “Rare disease heroes – Extraordinary collaborators we should be listening too.” Sean helped my friends and I write a paper called: “Multifaceted roles of ultra rare and rare disease patients/parents in drug discovery.” YES, Allison Moore is going to be published! It will be in Drug Discovery Today, soon. The link to the reprint is below.