Dakota Reilly launched a line of CMT related cards, stickers, and pins for CMT Awareness Month.
CMT has been an unexposed disease for many decades, but HNF’s mission is to change that. For over 9 years, HNF has been connecting to Neurologists at important meetings.
Start the New Year by getting involved and helping HNF conquer CMT. There are many ways you can get involved.
Meet Lainie Ishbia who created Trend-ABLE to empower women with invisible physical disabilities and challenges.
a new partnership with The Mighty
Q&A with Dave Washabaugh
ust released, the third annual Rare Neurological Disease Special Report has CMT taking a front-row position with several articles discussing the latest developments in CMT treatments and improving CMT care.
video of Robert’s keynote about CMT going largely unrecognized
HNF encourages a holistic-educational and empowerment approach to its workshops. We will provide participants with a safe environment to talk about the emotional dynamics of dealing with a chronic illness.
The study is a collection of over 80 intimate and candid interviews, painting a vivid picture of those living with CMT. These interviews brought to light a range of different experiences: from devastating and heart-wrenching, to courageous and inspiring.
HNF has partnered with Inspire to provide a safe online health and wellness community in which patients, families, friends, and caregivers connect with one another for support and information.
We are excited to announce our new collaboration with Rare Disease Report (RDR) to increase awareness of Charcot-Marie-Tooth (CMT) among the medical community. RDR’s website, e-newsletter, and print publication offers an independent voice for the Rare Disease Community.