Privacy Policy and The Hereditary Neuropathy Foundation (HNF) are committed to safeguarding your privacy. This statement explains our online information practices and the choices you can make about the way the information you provide us is collected and used. For easy and direct access, we provide a link to this statement from our home page and all other pages of the site. HNF is the sole owner of and the only organization that uses the information collected on this site. We will not sell, share, or rent this information to others under any circumstances.

“Cookies and IP Addresses”

Other than the specific instances outlined in this policy, does not collect personal information about users or how they use the site. also does not use the information-tracking devices made possible through “cookies,” small pieces of data that may be sent to your Web browser from a server and stored on your computer’s hard drive. does collect non-personably identifiable information isuch as the unique IP address used by each visitor to the site. This information is used to track user navigation throughout the site, and may be used to create a better and more customized user experience in the future. In no instance is this non-identifiable user information shared with any third parties.

Mailing List

HNF provides a separate online form to join our email list. The information we collect may include: email address, type of user you are (patient, care giver, medical professional, other), age, gender, and race. This information is securely stored internally and accessed only when we correspond with our mailing list periodically during the year via email. You may contact us directly by email or regular mail if at any time you wish to be removed from the mailing list or if you would like to correct or change the personal information you have previously provided. You may email us at [email protected] or send regular mail to the address provided at the bottom of this page.

Links to Other Web Sites includes links, some temporary and some permanent, to other Web sites. We are not responsible for the privacy and security practices of any other Web site or the nature of the content contained therein.

Children’s Privacy

Although some of the content on the site is written specifically for children and their caregivers, we make every effort possible to ensure that we do not collect or maintain information on our Web site from those we know to be younger than 16 unless parental consent has been obtained in writing.

Changes to This Policy

In the event that decides to alter its privacy policy, the changes will be added directly to this statement. We will, however, always use information in accordance with the version of the privacy policy under which it was originally collected.

Contact Us

If you have specific questions or concerns about our privacy policy, please contact us at the following address: Hereditary Neuropathy Foundation, Inc. 1641 3rd Avenue #28K New York, NY 10128 Tel: 646-429-0851 [email protected]