CMT-Connect Pain Webinar

It’s no secret that PAIN can play a major role in the lives of many CMT patients. Despite its prevalence there is still little guidance on how families can identify and address the wide spectrum of pain our community continues to experience. HNF aims to help close...
CMT Community Member Spotlight: Estela Lugo

CMT Community Member Spotlight: Estela Lugo

People who live with progressive and rare diseases such as Charcot-Marie-Tooth can often feel isolated, forgotten, and powerless. HNF is determined to bring the power back to the patients! CMT-Connect™ is our new patient-focused initiative providing educational...
CMT-Connect: January 12, 2017 HNF Takes CMT-Connect On-Line!

Tuesday, August 9, 2016 CMT-Connect New York City

Participate in an HNF CMT-Connect workshop in your area! HNF encourages a holistic-educational and empowerment approach to its workshops.  We will provide participants with a safe environment to talk about the emotional dynamics of dealing with a chronic illness.  By...