Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

Accessible College: NEW CMT-Connect Webinar!

HNF is proud to announce that we have teamed up with Accessible College to host an informative and interactive webinar on Weds. 9/15 @7pm EDT to help provide families and individuals with an introduction to the skills and tools needed to ensure a successful transition to and through higher education.

Meet New Movement Is Medicine™ Ambassador, Janice Laurence

Meet Janice Laurence – a professionally certified teacher in BC, Canada since 1990.

Meet New Movement Is Medicine™ Ambassador, Traci Williams

Meet New Movement Is Medicine™ ambassador, Traci Williams, born with CMT 1A, teaching yoga since 2011 with over 500 hours of related training.

NEW Center of Excellence: Ryan Jacobson MD, Rush University, Chicago IL

Ryan Jacobson – a neuromuscular specialist at Rush University in Chicago. Completed neurology and neuromuscular training at the University of Michigan in Ann Arbor, Michigan.

New Center of Excellence – Oregon Neurology

Michael Balm, MD, Oregon Neurology is Mayo Clinic Neurology trained, with an additional fellowship in Neurophysiology.

Nov. 7th, 2021 – TCS New York City Marathon The TCS New York City Marathon course is a 26.2-mile race through The Big Apple. The first New York City Marathon took place in 1970 and was held in Central Park. Out of the 127 participants, only 55 men finished and the sole female runner dropped out.

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*NEW CMT Fitness Platform

*NEW CMT Fitness Platform

Movement is Medicine™ is an adaptive fitness initiative created by the Hereditary Neuropathy Foundation to encourage and support physical activity and healthy lifestyles among those affected by Charcot-Marie-Tooth (CMT) Disease or other rare conditions. Join for free virtual classes and more!

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