Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

New Study Measures Progression of CMT1A Nerve Impairment

New Study Measures Progression of CMT1A Nerve Impairment

Interim Analysis from the Ongoing Open-Label Phase III Extension Study Shows Sustained Benefits of PXT3003 for Patients with Charcot-Marie-Tooth Disease Type 1A (‘CMT1A’)

Interim Analysis from the Ongoing Open-Label Phase III Extension Study Shows Sustained Benefits of PXT3003 for Patients with Charcot-Marie-Tooth Disease Type 1A (‘CMT1A’) New results suggest good safety profile and sustained efficacy of PXT3003 as measured with the...

Meet HNF’s Newest International Board Member, Natalia Salejko

Natalia, her family, and her growing team are laser-focused on finding a cure for CMT through aggressive fundraising through many channels.

The Hereditary Neuropathy Foundation is excited to announce the Movement is Medicine™ Fitness Ambassador program!

The Hereditary Neuropathy Foundation is excited to announce the Movement is Medicine™ Fitness Ambassador program! Introduced at the first Movement is Medicine™ Summit in November 2019, HNF’s Movement is Medicine™ initiative was created to promote and support safe...

SORD: A Lesson in Repurposing Drugs to Treat Hereditary Neuropathy

SORD: A Lesson in Repurposing Drugs to Treat Hereditary Neuropathy GUEST AUTHOR: DAN KNAUSS SORD is a gene that has received a lot of attention lately. International research on SORD has increased greatly since the discovery in 2020 that its mutation causes the most...
*NEW CMT Fitness Platform

*NEW CMT Fitness Platform

Movement is Medicine™ is an adaptive fitness initiative created by the Hereditary Neuropathy Foundation to encourage and support physical activity and healthy lifestyles among those affected by Charcot-Marie-Tooth (CMT) Disease or other rare conditions. Join for free virtual classes and more!

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