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$100k Donation Match for CMT2A!

Double the Power of Every Dollar!

New CMT Update - Summer 2020!

Read about HNF events and CMT research in our latest newsletter.


Watch our webinar & learn more!

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

CMT Research

HNF Presents Research Findings at Three Prestigious Conferences


Virtual CMT Parties & Activities!

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

Ann Taylor Jones – Covid Nurse Working on the Front Lines 

Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.

HNF Collaborates with Italian CMT Organization ACMTRete on the ABCs of AFOs – Now Available in English & Italian!

Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.

Team CMT – 10 Years Strong

“We succeed in enterprises which demand the positive qualities we possess, but excel in those which also make use of our defects." - Alexis de TocquevilleTeam CMT was formed in 2010 and we ran our first race in Brown Deer, Wisconsin, at the end of April,...

Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT) Calling CMT1A Patients Ages 18-75

This study is a new international research project funded by the National Institutes of Health (NIH) called Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT). Dr. David Herrmann at the University of Rochester is the study's Principal...

NEW CMT Stationery by Designer, Dakota Reilly – Blue Bear

Dakota Reilly is a young adult based in New York who has CMT1A. After graduating from the Fashion Institute of Technology and working in the fashion industry, Dakota realized how much she enjoys creating her own products. Since working from home is ideal...

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