Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.
Acceleron is actively enrolling Phase 2 clinical study of ACE-083 for CMT patients ~ Learn more.
Latest News From HNF
Events
TD Bank Five Boro Bike Tour
New York City ~ May 6th, 2018
Come ride with HNF for CMT awareness.
An Evening for Charity
New York City ~ June 2nd, 2018
Join us on Saturday, June 2nd at 7:00pm at the BH Kitchen & Bar in New York City. The evening will be filled with dinner, drinks, music and fun activities. All proceeds will go towards the Therapeutic Research in Accelerated Discovery (TRIAD).
Grace's Courage Crusade’s Summer Celebration
Charlestown Rathskeller Tavern ~ July 21st, 2018
Join us for Grace’s Courage Crusade’s Summer Celebration hosted by the Caldarone/Sidoti Family on Saturday, July 21, 2018 from 4:00pm – 8:00pm at Charlestown Rathskeller Tavern to fund research for CMT Type 2.
HNF "Voice of the Patient" Patient Weekend
Washington, D.C. ~ September 28th & 29th, 2018
HNF will be hosting two ground-breaking patient-centered meetings to capture the “Voice of the Patient” so we can improve and implement protocols, treatments and the development of new therapeutics to meet our Charcot-Marie-Tooth (CMT) patients’ needs.
TCS New York City Marathon
New York City ~ November 4th, 2018
HNF is participating as a charity partner for the 2018 TCS New York City Marathon on Sunday, November 4th, 2018.