Movement is Medicine™Summit

Ability360 Sports & Fitness Center ~ Phoenix, AZ

November 8th – 9th, 2019

"Docs That Rock!"

Nominate Outstanding Health Care Providers

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

HNF Featured in Rare Neurological Disease Special Report

HNF is proud to announce that for the fifth year in a row, we have been featured in the annual Rare Neurological Disease Special Report.

2019 Million Dollar Bike Ride

HNF will be participating in the Million Dollar Bike Ride for the 1st time this year on Saturday, June 8th in Philadelphia, PA.

HNF Charitable Partner Events

HNF is proud to be a charitable partner for the following three events in 2019.

An Evening For Charity

Join us on Saturday, April 6th at 7:00pm at CoolMess Roslyn, New York. All proceeds will go towards the TRIAD program.

“Take A Look At This Heart“

Love, Sex & Disability Revealed in Groundbreaking New Documentary by Ben Duffy


TD Bank Five Boro Bike Tour

TD Bank Five Boro Bike Tour

May 5th, 2019 ~ NYC

Come ride with HNF for CMT awareness!

Join Us!

Million Dollar Bike Ride

Million Dollar Bike Ride

June 8th, 2019 ~ Philadelphia, PA

HNF will be participating in the Million Dollar Bike Ride (MDBR) for the first time this year.

Join Us!

TCS New York City Marathon

TCS New York City Marathon

November 3rd, 2019 ~ NYC

Join Team CMT as they run the iconic TCS New York City Marathon.

Join Us!

Movement is Medicine™ Summit

Movement is Medicine™ Summit

November 8th -9th, 2019 ~ Phoenix, AZ

HNF is excited to announce its latest patient-focused summit, Movement is Medicine™, being held at Ability360 Sports & Fitness Center in Phoenix, AZ.

Join Us!