Movement is Medicine™Summit

Ability360 Sports & Fitness Center ~ Phoenix, AZ

November 8th – 9th, 2019

Register Today

CMT & FDA Patient-Focused Drug Development Meeting

September 28, 2018

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Join GRIN Because Treatments Begin With You

Start Here

"Docs That Rock!"

Nominate Outstanding Health Care Providers

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Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

Download Guide

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Patients

Medical Professionals

Research/Industry

Get Involved

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting ~ Click Here

Latest News From HNF

2019 Million Dollar Bike Ride

HNF will be participating in the Million Dollar Bike Ride for the 1st time this year on Saturday, June 8th in Philadelphia, PA.

HNF Charitable Partner Events

HNF is proud to be a charitable partner for the following three events in 2019.

An Evening For Charity

Join us on Saturday, April 6th at 7:00pm at CoolMess Roslyn, New York. All proceeds will go towards the TRIAD program.

“Take A Look At This Heart“

Love, Sex & Disability Revealed in Groundbreaking New Documentary by Ben Duffy

StarWise Therapeutics & HNF Form A Strategic Alliance to Bring a NextGen HDAC6 Drug Therapy to CMT2A (MFN2) Patients

HNF has been committed to funding HDAC inhibitor research since 2014.

Events

An Evening for Charity

April 6th, 2019 ~ Roslyn, New York

Save the date at CoolMess in Roslyn, NY for An Evening for Charity.

Join Us!

TD Bank Five Boro Bike Tour

May 5th, 2019 ~ NYC

Come ride with HNF for CMT awareness!

Join Us!

Million Dollar Bike Ride

June 8th, 2019 ~ Philadelphia, PA

HNF will be participating in the Million Dollar Bike Ride (MDBR) for the first time this year.

Join Us!

TCS New York City Marathon

November 3rd, 2019 ~ NYC

Join Team CMT as they run the iconic TCS New York City Marathon.

Join Us!

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