1-855-HELPCMT (435-7268) [email protected]

2018 HNF Highlights

A Year In Review

Read The CMT Update

CMT & FDA Patient-Focused Drug Development Meeting

September 28, 2018

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Join GRIN Because Treatments Begin With You

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"Docs That Rock!"

Nominate Outstanding Health Care Providers
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Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

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Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Patients

Patients

 

Healthcare Providers

Medical Professionals

 

Research/Industry

Research/Industry

 

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Get Involved

 

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

A Letter From HNF’s CEO/Founder

2018 was a pivotal year for the Hereditary Neuropathy Foundation (HNF) and the entire Charcot-MarieTooth (CMT) Community.

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HNF Partners with True Reply, the Future of Data Collection: Voice Activated Technology (VAT)

True Reply’s Voice Activated Technology is an accessible and innovative new platform that captures the patient’s experience with CMT in their own words.

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The Externally-led Patient-Focused Drug Development (PFDD) Meeting Was A Huge Success!

HNF successfully executed the Externally-led PFDD Meeting for the FDA on September 28th, 2018.

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How One Rare Disease Organization Used Technology to Provide Greater Patient Insight to FDA

Daniel Levine from Global Genes speaks with Allison Moore on the Global Genes Rare Cast.

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Child Neurology Foundation (CNF) Leads a Collaborative Peer Support Work Group

HNF was honored to be chosen by the Child Neurology Foundation as the one of 11 advocacy groups.

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Events

10th Annual Charity Card Party For The H.E.L.P. Fund

10th Annual Charity Card Party For The H.E.L.P. Fund

March 22nd, 2019 ~ Boca Raton, FL

Save the date at the Broken Sound Country Club in Boca Raton, FL for the 10th Annual Charity Card Party for the H.E.L.P. Fund.

An Evening for Charity

An Evening for Charity

April 6th, 2019 ~ Roslyn, New York

Save the date at CoolMess in Roslyn, NY for An Evening for Charity.

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