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Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

SORD INSPIRE Phase III Clinical Trial

HNF Partner Applied Therapeutics is Currently Enrolling SORD Deficiency Patients for the INSPIRE Phase III Clinical TrialApplied Therapeutics, a clinical stage biopharmaceutical company, is conducting an international phase III randomized interventional trial for...

Moving Away From Perfectionism

Photo by Andrea Piacquadio from Pexels Written by: Ruth Riley   Moving Away From Perfectionism   The American Psychological Association (APA) understands perfectionism as the tendency to expect flawless performance from others or oneself over what the...

3 New CMT Drug Development Projects 

HNF Announces 3 New Drug Partnerships & Pathways Targeting Multiple Forms of CMT.

CMT Family Planning Webinar – Part 1: IVF & CMT

When it comes to family planning & CMT, there are ever-growing concerns, questions, and scientific developments that can seem overwhelming and have us questioning, “Where do we start?”. The Hereditary Neuropathy Foundation aims to shed light on this vast topic with a 3-Part Family Planning Series.

Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT

Could CMT’s Awareness Campaign Begin with CMT (Country Music Television)? Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine...
*NEW CMT Fitness Platform

*NEW CMT Fitness Platform

Movement is Medicine™ is an adaptive fitness initiative created by the Hereditary Neuropathy Foundation to encourage and support physical activity and healthy lifestyles among those affected by Charcot-Marie-Tooth (CMT) Disease or other rare conditions. Join for free virtual classes and more!

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