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CMT & COVID-19

Watch our webinar & learn more!

ZOOOM-A-Thons!

Virtual CMT Parties & Activities!

New CMT Update

Read about HNF events and CMT research in our latest newsletter.

CMT Research

HNF Presents Research Findings at Three Prestigious Conferences

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

$61,000 Raised to Support Pediatric CMT Trials

Last summer HNF teamed up with the Penn Medicine Orphan Disease Center (ODC) for the Million Dollar Bike Ride (MDBR) in Philadelphia. Our fundraising goal of over $30k was achieved and matched by the ODC, granting HNF over $60k to allocate to CMT research. Thanks to...

Pharnext Announces PXT3003 for the Treatment of Charcot-Marie-Tooth Disease Type 1A has Been Granted Promising Innovative Medicine (PIM) Designation by UK Medicines and Healthcare Products Regulatory Agency

PARIS, France, 8:30 a.m., March 18, 2020 (CET) – Pharnext SA (FR0011191287 - ALPHA), a biopharmaceutical company pioneering a new approach to developing innovative drug combinations based on big genomics data and artificial intelligence, today announced that the...

Pharnext raises € 7.7 million in a private placement

PARIS, France, 08:30 a.m., March 05, 2020 (CET) – Pharnext SA (FR0011191287 - ALPHA) (the “Company”), a biopharmaceutical company pioneering a new approach to developing innovative drug combinations based on its PLEOTHERAPY artificial intelligence platform harnessing...

ACE-083 did not achieve statistically significant improvements in functional endpoints relative to placebo; Acceleron to discontinue development of ACE-083.

CAMBRIDGE, Mass.–(BUSINESS WIRE)– Acceleron Pharma Inc. (NASDAQ:XLRN), a biopharmaceutical company dedicated to the discovery, development, and commercialization of TGF-beta superfamily therapeutics to treat serious and rare diseases, today announced that treatment...

The Hereditary Neuropathy Foundation’s Movement is Medicine™ Program Expands to Florida and Continues to Shed Light on the Impact Exercise Has on Charcot-Marie-Tooth (CMT)

  NEWS PROVIDED BY Hereditary Neuropathy Foundation  Mar 03, 2020, 06:03 ET NEW YORK, March 3, 2020 /PRNewswire/ -- The Hereditary Neuropathy Foundation (HNF) Movement is Medicine™ is expanding across the US with its latest Summit announced for March 21,...

Events

Spin 4 CMT

Spin 4 CMT

May 2, 2020, NYC

Spin with CMT Warrior & Instructor, Marc Daigle to support CMT research!

Register Today!

TD Five Boro Bike Tour

TD Five Boro Bike Tour

May 3, 2020, NYC

Ride with us for the TD Five Boro Tour!

Learn More!

Million Dollar Bike Ride

Million Dollar Bike Ride

June 13, 2020 ~ Philadelphia, PA

Register to ride with Team CMT on June 13th in Philadelphia at UPenn and help us double our donations for research!

 Join Us!

Fort Worth, TX ~ Jaxon's Crusaders Clay Shoot

Fort Worth, TX ~ Jaxon's Crusaders Clay Shoot

June 20, 2020

100 Targets | Four Person Teams | Team, Individual & Junior Awards | This is a family-friendly event and we will have kid activities.

Learn More!

TCS New York City Marathon

TCS New York City Marathon

November 1, 2020

Walk, run or donate to support Team CMT in the 2020 TCS Marathon!

Learn More!