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CMT on Twitch - Meet Career Gamer, Ellie

Twitch Event & Story

$100k Donation Match for CMT2A!

Double the Power of Every Dollar!

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CMT-Webinars

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Meet the Kohlers

GDAP1 & What's Ahead for Gene Therapy

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

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CMT Research

HNF Presents Research Findings at Three Prestigious Conferences

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New 2020 Movement Is Medicine™ Summits

New 2020 Summits Announced!

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CMT & COVID-19

Watch our webinar & learn more!

What you need to know

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Patients

Patients

 

Healthcare Providers

Medical Professionals

 

Research/Industry

Research/Industry

 

Participate Home Page

Get Involved

 

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

Joy Perry and The Christmas Bow

Joy Perry, CMT patient cast in a new Hallmark Christmas movie “The Christmas Bow.

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CMT&Me COMPETITION

Thursday, October 1 – Saturday, October 31 2020Newsletters THIS OCTOBER, RAISE AWARENESS AND RAISE MONEY!It is still CMT Awareness month in Europe. The European patients’ groups we worked with on the development of the CMT&Me app are now raising...
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Ann Taylor Jones – Covid Nurse Working on the Front Lines 

Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.

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HNF Collaborates with Italian CMT Organization ACMTRete on the ABCs of AFOs – Now Available in English & Italian!

Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.

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Team CMT – 10 Years Strong

“We succeed in enterprises which demand the positive qualities we possess, but excel in those which also make use of our defects." - Alexis de TocquevilleTeam CMT was formed in 2010 and we ran our first race in Brown Deer, Wisconsin, at the end of April,...
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#GivingTuesday - Dec. 1st

#GivingTuesday - Dec. 1st

 

Your Giving Tuesday gift can have a profound impact on those living with CMT.

December 1, 2020

Give to CMT Research

CMT on Twitch - Ellie (3lleBelle)

CMT on Twitch - Ellie (3lleBelle)

Learn how CMT career gamer, Ellie is raising awareness and research funds on the world’s leading live streaming gaming platform.

December 4-6th, 2020

Ellie’s Event & Story 

The Christmas Bow

The Christmas Bow

Watch Joy Perry Team CMT member and amateur actress with CMT star in her debut roll in The Christmas Bow on The Hallmark Movies and Mysteries Channel.

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Get Involved

Here's How!