IMPACT THAT MATTERS

Driving
CMT Research
with the
Patient’s Voice

With your help support love
nothing is impossible!

Drive Research

Drive Research

Turn your symptoms into science

Join Team CMT

Join Team CMT

Join the movement to make a difference for those living with CMT

Pledge Monthly

Pledge Monthly

Start your Monthly Gift of $10 today or consider the many other ways to give!

Research CMT

Research CMT

HNF has been conducting patient-focused research dating back to 2007.

Gift a Birthday

Gift a Birthday

Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.

Allison and Daniel Cohen

Welcome To The
Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.

What is CMT?

Genetic Testing

Patient Resources

Pediatrics & CMT

Newsletter

Join for notifications on events, campaigns, & news

About HNF

Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.

In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.

HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.

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From Our Blog

LATEST

HNF Recibió 2023 Health Equity en RARE Impact Grant

HNF Recibió 2023 Health Equity en RARE Impact Grant

¡La Fundación de Neuropatía Hereditaria se complace en anunciar que hemos recibido la Beca de Impacto de Equidad en Salud en RARE! La subvención financiará la campaña "No Camines Solo/Don't Walk Alone", una campaña de concienciación de CMT PSA en español con...

CMT Research Update: Pediatric Ankle And Gait Function

CMT Research Update: Pediatric Ankle And Gait Function

HNF TRIAD Academic Partner Connecticut Children’s Publishes Results of CMT Pediatric Natural History Study to Better Understand Ankle Function and Gait  HNF-funded research sought to determine how age and CMT type affect ankle strength in children. A detailed...

HNF Awarded 2023 Health Equity in RARE Impact Grant

HNF Awarded 2023 Health Equity in RARE Impact Grant

HNF Awarded 2023 Health Equity in RARE Impact Grant For Spanish CMT PSA Awareness Campaign with Diagnosis & Patient Care Toolkit. The Hereditary Neuropathy Foundation is thrilled to announce that we are a recipient of the Global Genes Health Equity in RARE Impact Grant!

HNF & Kenneth Raymond Join Forces to Clarify CMT Genetic Reports

HNF & Kenneth Raymond Join Forces to Clarify CMT Genetic Reports

HNF & Kenneth Raymond Join Forces to Clarify CMT Genetic Reports  Since the launch of HNF’s CMT Genie last August, over 200 participants have participated in hopes of receiving a genetic confirmation of their CMT symptoms. Although many have found a definitive...

Featured

Featured Webinars

Active Hands

Active Hands

Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.

CMT-Connect Pain Webinar

CMT-Connect Pain Webinar

New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.

UPCOMING EVENTS

TCS New York City Marathon

TCS New York City Marathon

On November 5, 2023 – Runners will take on the marathon to support Charcot-Marie-Tooth Disease research.

TRENDING