Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

Meet New Movement Is Medicine™ Ambassador, Janice Laurence

Meet Janice Laurence - Inclusive Contemporary Dance Hi, my name is Janice Laurence and I have been a professionally certified teacher in BC, Canada since 1990.  I have a MA in education and am passionate about physically integrated dance for all abilities and bodies....

Meet New Movement Is Medicine™ Ambassador, Traci Williams

Meet New Movement Is Medicine™ Ambassador, Traci Williams Hi, my name is Traci Williams, and I live in Montreal, Canada. I was born with CMT 1A, diagnosed as a child (now in my 50s), and was told I would be permanently in a wheelchair by the age of 20. At 19, I was...

NEW Center of Excellence: Ryan Jacobson MD, Rush University, Chicago IL

NEW Center of Excellence: Ryan Jacobson MD, Rush University, Chicago IL   Hi, Dr. Jacobson! Tell us about yourself? I am a neuromuscular specialist at Rush University in Chicago. I completed my neurology and neuromuscular training at the University of Michigan in...

New Center of Excellence – Oregon Neurology

New Center of Excellence Michael Balm, MD, Oregon Neurology  Tell us about yourself? I am Mayo Clinic Neurology trained, with an additional fellowship (also at Mayo) in Neurophysiology.  I have ABPN added qualifications in Clinical Neurophysiology, and have been in...

Meet our New Movement is Medicine™ Ambassador, Traci Williams

Meet our New Movement is Medicine™ Ambassador, Traci Williams Traci Williams - Kundalini Yoga Hi, my name is Traci Williams, and I live in Montreal, Canada. I was born with CMT 1A, diagnosed as a child (now in my 50s), and was told I would be permanently in a...

Nov. 7th, 2021 – TCS New York City Marathon The TCS New York City Marathon course is a 26.2-mile race through The Big Apple. The first New York City Marathon took place in 1970 and was held in Central Park. Out of the 127 participants, only 55 men finished and the sole female runner dropped out.

Join Now!

*NEW CMT Fitness Platform

*NEW CMT Fitness Platform

Movement is Medicine™ is an adaptive fitness initiative created by the Hereditary Neuropathy Foundation to encourage and support physical activity and healthy lifestyles among those affected by Charcot-Marie-Tooth (CMT) Disease or other rare conditions. Join for free virtual classes and more!

Join Now!

Get Involved