Become a CMT Game-Changer for CMT Awareness Month

CMT Game-Changer

Noun, Pronounced: [see-em-tee geym-cheyn-jer]

Definition: An empowered individual who accelerates CMT awareness, research, wellness, advocacy, fundraising and patient empowerment through their action and involvement in community events, programs, campaigns and studies.

Join the CMT Floss Dance Movement

Start your own #FlossoutCMT #CMTflossdancechallenge

HNF "Voice of the Patient" Patient Weekend

Hyattsville, Maryland ~ September 28th & 29th, 2018

Patient Care

Helpful resources for the treatment & management of CMT.

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Acceleron is actively enrolling Phase 2 clinical study of ACE-083 for CMT patients ~ Learn more.

Latest News From HNF

Allison Moore Speaker at 2018 Rare Patient Advocacy Symposium

On May 19, HNF participated in the Rare Patient Advocacy Symposium in partnership with Penn Medicine Orphan Disease Center and Global Genes.

Thank You and Congratulations To Team CMT Riders

On May 6, 2018, Team CMT conquered 42 miles of the TD Bank Five Boro Bike Tour through each of Manhattan’s five boroughs!

Why I’ll be attending the “Voice of the Patient Weekend” A Patient’s Perspective

I am attending HNF’s “Voice of the Patient” Weekend 2018 to tell the FDA and other stakeholders how TRPV4 HN impacts my life.

Catching up with Team CMT Member Katherine Crandall Symons

HNF catches up with Team CMT Member Katherine Crandall Symons

Dr. Lucia Notterpek to Take the Reins as HNF’s New Chief Scientific Officer.

HNF is excited to announce that Dr. Lucia Notterpek will Take the Reins as HNF’s New Chief Scientific Officer.

Events

HNF "Voice of the Patient" Patient Weekend

HNF "Voice of the Patient" Patient Weekend

Hyattsville, Maryland ~ September 28th & 29th, 2018

HNF will be hosting two ground-breaking patient-centered  meetings to capture the “Voice of the Patient” so we can improve and implement protocols, treatments and the development of new therapeutics to meet our Charcot-Marie-Tooth (CMT) patients’ needs.

Join Us!

CMTee It Up! A Golf Event to Benefit CMT Research

CMTee It Up! A Golf Event to Benefit CMT Research

Evanston Golf Club, Skokie, IL ~ October 15th, 2018

Join us for golf, dinner and giving as we tee it up for CMT, benefiting the Hereditary Neuropathy Foundation!

Join Us!

TCS New York City Marathon

TCS New York City Marathon

New York City ~ November 4th, 2018

HNF is participating as a charity partner for the 2018 TCS New York City Marathon on Sunday, November 4th, 2018.

Join Us!