Movement is Medicine™ Summit

Ability360 Sports & Fitness Center ~ Phoenix, AZ

November 8th – 9th, 2019

Register Today

CMT & FDA Patient-Focused Drug Development Meeting

September 28, 2018

Watch Now

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

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Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Patients

Medical Professionals

Research/Industry

Get Involved

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting ~ Click Here

Latest News From HNF

HNF is Now Recruiting Patients for New Gene Therapy Research Projects

HNF has selected its first three types of CMT based on their potential for success…and we need your help!

Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program

The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride.

Help Support HNF with the RoundUp app

HNF has partnered with an app called RoundUp that allows users to donate the change to support CMT research.

HNF Announces The Second Pediatric Center of Excellence for CMT

HNF’s 2nd Pediatric Center of Excellence for CMT is located at the Ann and Robert H. Lurie Children’s Hospital of Chicago.

What Is Fast Track?

The FDA has awarded Fast Track designation to two drugs currently in development for CMT.

Events

Movement is Medicine™ Summit

November 8th -9th, 2019 ~ Phoenix, AZ

HNF is excited to announce its latest patient-focused summit, Movement is Medicine™, being held at Ability360 Sports & Fitness Center in Phoenix, AZ.

Join Us!

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