Movement is Medicine™ Summit

Ability360 Sports & Fitness Center ~ Phoenix, AZ

November 8th – 9th, 2019

Team CMT Spin

Spin with us for CMT

CMT & FDA Patient-Focused Drug Development Meeting

September 28, 2018

"Docs That Rock!"

Nominate Outstanding Health Care Providers

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Patients

Patients

Healthcare Providers

Medical Professionals

Research/Industry

Research/Industry

Participate Home Page

Get Involved

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting ~ Click Here

Latest News From HNF

Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program

The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride.

Help Support HNF with the RoundUp app

HNF has partnered with an app called RoundUp that allows users to donate the change to support CMT research.

HNF Announces The Second Pediatric Center of Excellence for CMT

HNF’s 2nd Pediatric Center of Excellence for CMT is located at the Ann and Robert H. Lurie Children’s Hospital of Chicago.

What Is Fast Track?

The FDA has awarded Fast Track designation to two drugs currently in development for CMT.

Movement is Medicine™ Summit

HNF is excited to announce the Movement is Medicine™ Summit, being held at Ability360 Sports & Fitness Center in Phoenix, AZ, on November 8-9.

Events

Team CMT Spin-A-Thon - Santa Monica, CA

Team CMT Spin-A-Thon - Santa Monica, CA

September 21st, 2019 ~ Revolution Fitness

All proceeds go towards CMT research and programs.

Team CMT Spin-A-Thon - Boston, MA

Team CMT Spin-A-Thon - Boston, MA

September 28th, 2019 ~ The Handle Bar

All proceeds go towards CMT research and programs.

TCS New York City Marathon

TCS New York City Marathon

November 3rd, 2019 ~ NYC

Join Team CMT as they run the iconic TCS New York City Marathon.

Movement is Medicine™ Summit

Movement is Medicine™ Summit

November 8th -9th, 2019 ~ Phoenix, AZ

HNF is excited to announce its latest patient-focused summit, Movement is Medicine™, being held at Ability360 Sports & Fitness Center in Phoenix, AZ.

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