Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

CMT1A Clinical Trial Update: Pharnext PREMIER trial of PXT3003

    CMT1A Clinical Trial Update: Pharnext PREMIER trial of PXT3003  The PREMIER Trial, which is being conducted in patients with mild-to-moderate CMT1A, is expected to enroll approximately 350 subjects ages 16-65 with a confirmed genetic diagnosis of CMT1A....

Brace Yourself For Another Day

My name is Ginnell McDonald. I live in Madison, Wisconsin where I grew up. I am a wife, mom, retired teacher and now an author/illustrator. In my spare time I love learning new things, traveling, drawing, going on picnics and eating cherry pie! There are several...

HNF Launches NEW Virtual CMT Fitness Platform with Ambassador Instructors

The Hereditary Neuropathy Foundation believes that activity plays an essential role in physical and mental well being, especially for people affected by debilitating diseases like Charcot-Marie-Tooth. The Movement is Medicine™ mission is to promote the safe adoption...

Mouse Models of Human CNTNAP1 Mutations: Strategies to Rescue and Restore Functions

MANZOOR A. BHAT, M.S., PH.D., DEPARTMENT OF CELLULAR AND INTEGRATIVE PHYSIOLOGY UT HEALTH SAN ANTONIO, TX Myelination of nerves has the sole purpose of allowing axons to propagate nerve impulses over long distances in a saltatory manner. Peripheral or central...
3/7 Virtual Summit - Movement is Medicine™

3/7 Virtual Summit - Movement is Medicine™

The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the expansion of our Movement is Medicine™ program with a new 1-day Virtual Summit in partnership with Advent Health on Sunday, March 7th from 9am-2:30pm ET.

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*NEW CMT Fitness Platform

*NEW CMT Fitness Platform

Movement is Medicine™ is an adaptive fitness initiative created by the Hereditary Neuropathy Foundation to encourage and support physical activity and healthy lifestyles among those affected by Charcot-Marie-Tooth (CMT) Disease or other rare conditions. Join for free virtual classes and more!

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