Noun, Pronounced: [see-em-tee geym-cheyn-jer]
Definition: An empowered individual who accelerates CMT awareness, research, wellness, advocacy, fundraising and patient empowerment through their action and involvement in community events, programs, campaigns and studies.
Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.
Latest News From HNF
HNF "Voice of the Patient" Patient Weekend
Hyattsville, Maryland ~ September 28th & 29th, 2018
HNF will be hosting two ground-breaking patient-centered meetings to capture the “Voice of the Patient” so we can improve and implement protocols, treatments and the development of new therapeutics to meet our Charcot-Marie-Tooth (CMT) patients’ needs.
CMTee It Up! A Golf Event to Benefit CMT Research
Evanston Golf Club, Skokie, IL ~ October 15th, 2018
Join us for golf, dinner and giving as we tee it up for CMT, benefiting the Hereditary Neuropathy Foundation!
TCS New York City Marathon
New York City ~ November 4th, 2018
HNF is participating as a charity partner for the 2018 TCS New York City Marathon on Sunday, November 4th, 2018.