Patient Care

Helpful resources for the treatment & management of CMT.

TCS New York City Marathon

Sunday November 4th, 2018

TCS New York City Marathon

Band Together for CMT

Helping CMT patients get and stay physically active.

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Acceleron is actively enrolling Phase 2 clinical study of ACE-083 for CMT patients ~ Learn more.

Latest News From HNF

10 Reasons To Join The Inspire CMT Community

10 Reasons To Join The Inspire CMT Community Today!

New Executive Director for HNF: Courtney Hollett

HNF is pleased to announce that Courtney Hollett has been named Executive Director.

Landmark “Voice of the Patient” PFDD CMT Meeting Needs All Hands on Deck!

Help support this ground-breaking PFDD CMT Meeting being held on September 28, 2018 in Washington, D.C.

Events

TD Bank Five Boro Bike Tour

TD Bank Five Boro Bike Tour

May 6, 2018

Come ride with HNF for CMT awareness.

Join Us!

Externally-Led Patient-Focused Drug Development CMT Meeting

Externally-Led Patient-Focused Drug Development CMT Meeting

Washington, D.C. ~ September 28th, 2018

HNF will be holding a landmark externally-led Patient-Focused Drug Development (PFDD) Meeting for CMT and INs in Washington, D.C. on Friday, September 28, 2018.

Join Us!

TCS New York City Marathon

TCS New York City Marathon

New York City ~ Novemeber 4th, 2018

HNF is participating as a charity partner for the 2018 TCS New York City Marathon on Sunday, November 4th, 2018.

Join Us!