Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

CMT-Connect Pain Webinar

It’s no secret that PAIN can play a major role in the lives of many CMT patients. Despite its prevalence there is still little guidance on how families can identify and address the wide spectrum of pain our community continues to experience. HNF aims to help close...

Joy Perry and The Christmas Bow

Joy Perry, CMT patient cast in a new Hallmark Christmas movie “The Christmas Bow.


Thursday, October 1 – Saturday, October 31 2020Newsletters THIS OCTOBER, RAISE AWARENESS AND RAISE MONEY!It is still CMT Awareness month in Europe. The European patients’ groups we worked with on the development of the CMT&Me app are now raising awareness about...

Ann Taylor Jones – Covid Nurse Working on the Front Lines 

Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.

HNF Collaborates with Italian CMT Organization ACMTRete on the ABCs of AFOs – Now Available in English & Italian!

Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.

The Christmas Bow

The Christmas Bow

Watch Joy Perry Team CMT member and amateur actress with CMT star in her debut roll in The Christmas Bow on The Hallmark Movies and Mysteries Channel.

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