IMPACT THAT MATTERS

Driving
CMT Research
with the
Patient’s Voice

With your help support love
nothing is impossible!

Drive Research

Drive Research

Turn your symptoms into science

Join Team CMT

Join Team CMT

Join the movement to make a difference for those living with CMT

Pledge Monthly

Pledge Monthly

Start your Monthly Gift of $10 today or consider the many other ways to give!

Research CMT

Research CMT

HNF has been conducting patient-focused research dating back to 2007.

Gift a Birthday

Gift a Birthday

Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.

Allison and Daniel Cohen

Welcome To The
Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.

What is CMT?

Genetic Testing

Patient Resources

Pediatrics & CMT

Newsletter

Join for notifications on events, campaigns, & news

About HNF

Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.

In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.

HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.

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From Our Blog

LATEST

emBRACE it™ Episode #43

emBRACE it™ Episode #43

How do we honor the inevitable grief that comes with disability and establish healthy boundaries with those closest to us? Rachelle Friedman, aka “The Brainy Social Worker,” is a disabled therapist who understands that there’s no one-size-fits-all approach to healing....

CMT Safe Space – Best Shoes for High-Arched Feet?

CMT Safe Space – Best Shoes for High-Arched Feet?

CMT Safe Space - Best Shoes for High-Arched Feet? Thanks to all those who joined last week! Check out the latest topics on all things CMT:About CMT Safe Space  When searching for support and answers to CMT questions, social media can be very beneficial. However, not...

CMT Beyond Social Media: What is CMT Safe Space!

CMT Beyond Social Media: What is CMT Safe Space!

When searching for support and answers to CMT questions, social media can be very beneficial. However, not everyone is on social media, and not everyone feels comfortable asking questions that friends and family may see…especially if they are more private in nature....

Hypotonia & CMT

Hypotonia & CMT

Hypotonia, or low muscle tone, can be caused by a variety of factors, including genetic conditions like Charcot-Marie-Tooth (CMT) disease

Bike for CMT Research | TD Bank Five Boro Bike Tour

Bike for CMT Research | TD Bank Five Boro Bike Tour

HNF is thrilled to announce that we have been chosen as a charity partner for the TD Bank Five Boro Bike Tour for the 13th year in a row! This exciting event will take place on May 7, 2023, in the bustling city of New York. Riders will have the opportunity to traverse...

Featured

Bike for CMT Research | TD Bank Five Boro Bike Tour

Bike for CMT Research | TD Bank Five Boro Bike Tour

HNF is thrilled to announce that we have been chosen as a charity partner for the TD Bank Five Boro Bike Tour for the 13th year in a row! This exciting event will take place on May 7, 2023, in the bustling city of New York. Riders will have the opportunity to traverse...

Featured Webinars

Active Hands

Active Hands

Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.

CMT-Connect Pain Webinar

CMT-Connect Pain Webinar

New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.

UPCOMING EVENTS

Bike for CMT Research | TD Bank Five Boro Bike Tour

Bike for CMT Research | TD Bank Five Boro Bike Tour

HNF is thrilled to announce that we have been chosen as a charity partner for the TD Bank Five Boro Bike Tour for the 13th year in a row! This exciting event will take place on May 7, 2023, in the bustling city of New York. Riders will have the opportunity to traverse...

TCS New York City Marathon

TCS New York City Marathon

On November 5, 2023 – Runners will take on the marathon to support Charcot-Marie-Tooth Disease research.

TD Bank Five Boro Bike Tour

TD Bank Five Boro Bike Tour

On May 7, 2023 – Riders will take on the streets of NYC free from cars and tackle the 42 miles to fund research for Charcot-Marie-Tooth Disease.

TRENDING