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HNF "Voice of the Patient" Patient Weekend

Hyattsville, Maryland ~ September 28th & 29th, 2018

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Patient Care

Helpful resources for the treatment & management of CMT.

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Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

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Medical Professionals

Research/Industry

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Acceleron is actively enrolling Phase 2 clinical study of ACE-083 for CMT patients ~ Learn more.

Latest News From HNF

Why I’ll be attending the “Voice of the Patient Weekend” A Patient’s Perspective

I am attending HNF’s “Voice of the Patient” Weekend 2018 to tell the FDA and other stakeholders how TRPV4 HN impacts my life.

Catching up with Team CMT Member Katherine Crandall Symons

HNF catches up with Team CMT Member Katherine Crandall Symons

HNF’S Board is Growing!

HNF is excited to announce the addition of four new board members to our team!

Meet Dr. Raghav Govindarajan MU Health Care

We caught up with Dr. Govindarajan, board certified neuromuscular physician at University of Missouri, to discuss his multifaceted approach to treating CMT.

Designing a Better Grip Active Hands Q&A with Rob Smith

When we learned of Rob Smith’s story, and how his line of gripping aids came to be, we knew it was one worth sharing.

Events

Grace's Courage Crusade’s Summer Celebration

Charlestown Rathskeller Tavern ~ July 21st, 2018

Join us for Grace’s Courage Crusade’s Summer Celebration hosted by the Caldarone/Sidoti Family on Saturday, July 21, 2018 from 4:00pm – 8:00pm at Charlestown Rathskeller Tavern to fund research for CMT Type 2.

Join Us!

HNF "Voice of the Patient" Patient Weekend

Hyattsville, Maryland ~ September 28th & 29th, 2018

HNF will be hosting two ground-breaking patient-centered meetings to capture the “Voice of the Patient” so we can improve and implement protocols, treatments and the development of new therapeutics to meet our Charcot-Marie-Tooth (CMT) patients’ needs.

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TCS New York City Marathon

New York City ~ November 4th, 2018

HNF is participating as a charity partner for the 2018 TCS New York City Marathon on Sunday, November 4th, 2018.

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