Select Page

CMT-Webinars

Watch Here!

Meet the Kohlers

GDAP1 & What's Ahead for Gene Therapy

CMT & COVID-19

Watch our webinar & learn more!

What you need to know

New CMT Update

Read about HNF events and CMT research in our latest newsletter.

Read More

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

Download Guide

CMT Research

HNF Presents Research Findings at Three Prestigious Conferences

Read More

ZOOOM-A-Thons!

Virtual CMT Parties & Activities!

Join Us!

New 2020 Movement Is Medicine™ Summits

New 2020 Summits Announced!

Join Us!

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Patients

Patients

 

Healthcare Providers

Medical Professionals

 

Research/Industry

Research/Industry

 

Participate Home Page

Get Involved

 

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

Clinical Trial for CMT1A begins in Korea

The Hereditary Neuropathy Foundation is excited to share that Helixmith, specializing in gene therapy research for over 20 years, has kicked off its phase I and 2a clinical trial for using VM202 (Engensis) to treat CMT1A. The company is currently...
Read More

HEREDITARY NEUROPATHY FOUNDATION (HNF) IS HERE FOR YOU DURING THIS TIME OF UNCERTAINTY

As you know, HNF is monitoring the COVID-19 situation as it continues. Along with other organizations worldwide, we have postponed all in person events through the end of July and will continue to assess future in-person events, as necessary. The HNF team...
Read More

New Board Member, Lisa McCarthy

Through their decades-long friendship, Lisa was inspired by HNF's Founder/CEO Allison’s resilience and drive to help the CMT community live full lives and find a cure. After leading a Fast Forward session at the 2018 HNF Summit,  Lisa felt compelled to get more...
Read More

Novel findings of a new common type of CMT2 that might be the 1st step to a treatment: SORD gene deficiency, the most common autosomal-recessive type of CMT

Dr. Stephan Züchner and colleagues at the University of Miami (Drs. Andrea Cortese, Grace Zhai, Andriana Rebelo), along with the Inherited Neuropathies Consortium (INC) – a group of CMT  academic experts led by Dr. Michael Shy at the University of Iowa – has...
Read More

CMT & COVID-19 FAQ WITH DR. BACH

Respiratory weakness is only recently being acknowledged as a symptom of CMT so there is still a lot that we as patients need to learn regarding standard of care so that we (and our loved ones) can be our best advocates. Having CMT doesn’t necessarily put you in the...
Read More

Get Involved

Here's How!