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CMT Research

HNF Presents Research Findings at Three Prestigious Conferences

New CMT Update

Read about HNF events and CMT research in our latest newsletter.

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

HNF on the Forefront of Pain Research to Support CMT Patients

Allison Moore, HNF Founder/CEO, along with her team, took action and led the HNF groundbreaking CMT pain initiative to help the community.

Telling Our Story

Lots of people have seen Chris Wodke in her Team CMT uniform but fewer have seen her in her other uniform, as a member of the National Ski Patrol (NSP).

Calling all Grandparents (and Parents)!

Join Iris Adler as she continues fundraising for her grandson and the many others living with Charcot-Marie-Tooth Type 2A

Dear Kristin,

My husband now says he doesn’t want children because of the disease. I am devastated. I always dreamed of a big family.

EmBRACE It Podcast with Lainie Ishbia and Estela Lugo

We want our CMT viewers and listeners to feel like they can relate to us, and that it’s perfectly okay to be imperfect!


Brews for a Cause

Brews for a Cause

February 1, 2020 ~ Flour City Station, Rochester, NY

Save the date for Zach’s Brews for a Cause! Tickets $10 (No drinks included) VIP Tickets $20 (2 Bud Lights and 1 Three Heads)

 Join Us!

11th Annual Charity Card Party For The H.E.L.P. Fund

11th Annual Charity Card Party For The H.E.L.P. Fund

February 7th, 2020 ~ Boca Raton, FL

Save the date at the Boca West Country Club in Boca Raton, FL for the 11th Annual Charity Card Party for the H.E.L.P. Fund.

Join Us!

Million Dollar Bike Ride

Million Dollar Bike Ride

June 13, 2020 ~ Philadelphia, PA

Register to ride with Team CMT on June 13th in Philadelphia at UPenn and help us double our donations for research!

 Join Us!

Movement Is Medicine 2020 Summit

Movement Is Medicine 2020 Summit

November 14-15, 2020 ~ Phoenix, AZ

Save the date for our 2020 Movement Is Medicine Summit and learn more!

Learn More!