Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

The Hereditary Neuropathy Foundation is excited to announce the Movement is Medicine™ Fitness Ambassador program!

The Hereditary Neuropathy Foundation is excited to announce the Movement is Medicine™ Fitness Ambassador program! Introduced at the first Movement is Medicine™ Summit in November 2019, HNF’s Movement is Medicine™ initiative was created to promote and support safe...

SORD: A Lesson in Repurposing Drugs to Treat Hereditary Neuropathy

SORD: A Lesson in Repurposing Drugs to Treat Hereditary Neuropathy GUEST AUTHOR: DAN KNAUSS SORD is a gene that has received a lot of attention lately. International research on SORD has increased greatly since the discovery in 2020 that its mutation causes the most...

TRPV4 Hereditary Neuropathy Patients Connect with Johns Hopkins Experts to Push Research Efforts Forward

BY STEPHANIE CARMODY, TRPV4 RELATED HEREDITARY NEUROPATHY (CHARCOT MARIE TOOTH TYPE 2C) PATIENT TRPV4 Hereditary Neuropathy Patients Connect with Johns Hopkins Experts to Push Research Efforts Forward When you are diagnosed with an ultrarare type of hereditary...

CMT1A Clinical Trial Update: Pharnext PREMIER trial of PXT3003

    CMT1A Clinical Trial Update: Pharnext PREMIER trial of PXT3003  The PREMIER Trial, which is being conducted in patients with mild-to-moderate CMT1A, is expected to enroll approximately 350 subjects ages 16-65 with a confirmed genetic diagnosis of CMT1A....
4/8 Webinar - The Benefits of Kundalini

4/8 Webinar - The Benefits of Kundalini

Join us for this CMT-Connect Webinar as we dive deeper into Traci’s incredible CMT journey and the powerful benefits of Kundalini yoga.

Having a Type A personality, yoga bored me, but my body, even with pain, wanted to do it… and I listened”.  She has been teaching since 2011 and now has over 500 hours of related training, including in-depth anatomy and physiology!

Register!

*NEW CMT Fitness Platform

*NEW CMT Fitness Platform

Movement is Medicine™ is an adaptive fitness initiative created by the Hereditary Neuropathy Foundation to encourage and support physical activity and healthy lifestyles among those affected by Charcot-Marie-Tooth (CMT) Disease or other rare conditions. Join for free virtual classes and more!

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