1-855-HELPCMT (435-7268) [email protected]

CMT & FDA Patient-Focused Drug Development Meeting

September 28, 2018

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Join GRIN Because Treatments Begin With You

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#GivingTuesday

Join the global giving movement on November 27th.

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"Docs That Rock!"

Nominate Outstanding Health Care Providers
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Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?

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Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

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Patients

 

Healthcare Providers

Medical Professionals

 

Research/Industry

Research/Industry

 

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Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

How One Rare Disease Organization Used Technology to Provide Greater Patient Insight to FDA

Daniel Levine from Global Genes speaks with Allison Moore on the Global Genes Rare Cast.

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Child Neurology Foundation (CNF) Leads a Collaborative Peer Support Work Group

HNF was honored to be chosen by the Child Neurology Foundation as the one of 11 advocacy groups.

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Join GRIN! About The Global Registry for Inherited Neuropathies

Help us to improve outcome measures, develop biomarkers and improve patient care by joining the Global Registry for Inherited Neuropathies

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I Am Helena The Mermaid And I Have CMT Disease

I try to be a positive influence to others in wheelchairs or with disabilities, and hope I can share beauty and magic with those who need it most.

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HNF Announces The First Pediatric Centers of Excellence for CMT

There are those situations in life where you are destined to meet and for me, meeting Dr. Jahannaz Dastgir — “Naz for short” — was one of them.

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Events

#GivingTuesday

#GivingTuesday

November 27th, 2018

HNF continues to support #GivingTuesday. Join the global giving movement on November 27th!

Join Us!

10th Annual Charity Card Party For The H.E.L.P. Fund

10th Annual Charity Card Party For The H.E.L.P. Fund

March 22nd, 2019 ~ Boca Raton, FL

Save the date at the Broken Sound Country Club in Boca Raton, FL for the 10th Annual Charity Card Party for the H.E.L.P. Fund.

An Evening for Charity

An Evening for Charity

April 6th, 2019 ~ Roslyn, New York

Save the date at CoolMess in Roslyn, NY for An Evening for Charity.

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