Driving
CMT Research
with the
Patient’s Voice
With your help support love
nothing is impossible!
Drive Research
Drive Research
Turn your symptoms into science
Join Team CMT
Join Team CMT
Pledge Monthly
Pledge Monthly
Start your Monthly Gift of $10 today or consider the many other ways to give!
Research CMT
Research CMT
HNF has been conducting patient-focused research dating back to 2007.
Gift a Birthday
Gift a Birthday
Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.
Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.
What is CMT?
Genetic Testing
Patient Resources
Pediatrics & CMT
Newsletter
Join for notifications on events, campaigns, & news
About HNF
Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.
In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.
HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.
From Our Blog
LATEST
CMT Speak Out this Month with CMT (re)Post-its!
1. Select and save your favorite images below 2. Post and tag us with your own personal message across social media! Use #CMTSpeakOut and #CMTWeGotThis1. Right Click2. Click "Save Image As"3. Sign into your social media account and post image and comment.Instagram:...
CMT Self Care: A 30-Day Journal
CMT Self-Care: A 30-Day Journey to Empowerment and Well-Being Living with Charcot-Marie-Tooth (CMT) disease is a unique challenge—one that demands resilience, strength, and above all, self-care. Introducing "CMT Self-Care: A 30-Day Journal," a thoughtfully crafted...
CMT Awareness Month 2024 – #CMTSPEAKOUT
CMT Speak Out - #CMTspeakout Charcot-Marie-Tooth (CMT) disease is one of the most common yet least-known neuromuscular disorders. This year, for CMT Awareness Month 2024, we embrace the theme "CMT Speak Out"—a powerful call for those affected to share their stories...
HNF participates in inaugural Critical Path Institute (C-Path) Global Impact Conference in Washington, DC
Hereditary Neuropathy Foundation (HNF) is proud to announce that Founder and CEO Allison Moore will participate as a panelist in the inaugural Critical Path Institute (C-Path) Global Impact Conference, taking place from September 9-11, 2024, at the Washington Marriott...
HNF Awards the inaugural HNF Clinical Translation Fellowship
HNF Awards the inaugural HNF Clinical Translation Fellowship in the amount of $170,000 to Kayla Cornett, PhD We are thrilled to announce the establishment of the HNF Clinical Translation Fellowship, awarded to Kayla Cornett, PhD, a distinguished postdoctoral research...
Jaxson’s Clayshoot for Mito CMTs
Jaxson’s Clayshoot for Mito CMTs Among the various forms of CMT, mitochondrial CMT (Mito-CMT) represents a particularly challenging subset, where genetic mutations impact the mitochondria—often referred to as the powerhouse of the cell. For those living with Mito-CMT,...
Research Opportunity: CMT-SORD
Research Opportunity: CMT-SORD I am writing to you today because there is a research opportunity you may be eligible for. When you joined HNF’s Global Registry for Inherited Neuropathies (GRIN), you agreed to be contacted regarding these opportunities. Since 2001, the...
Summit Agenda
DAY #2 8:30am: Check-in & Breakfast 9:00 - 10:00am: Panel Discussion: Revolutionizing Clinical Trials with Video – If a Picture is Worth a Thousand Words, a Video is Worth a Million To make clinical trials for CMT successful, we need new ways to measure how the...
Featured
HNF participates in inaugural Critical Path Institute (C-Path) Global Impact Conference in Washington, DC
Hereditary Neuropathy Foundation (HNF) is proud to announce that Founder and CEO Allison Moore will participate as a panelist in the inaugural Critical Path Institute (C-Path) Global Impact Conference, taking place from September 9-11, 2024, at the Washington Marriott...
HNF Awards the inaugural HNF Clinical Translation Fellowship
HNF Awards the inaugural HNF Clinical Translation Fellowship in the amount of $170,000 to Kayla Cornett, PhD We are thrilled to announce the establishment of the HNF Clinical Translation Fellowship, awarded to Kayla Cornett, PhD, a distinguished postdoctoral research...
Jaxson’s Clayshoot for Mito CMTs
Jaxson’s Clayshoot for Mito CMTs Among the various forms of CMT, mitochondrial CMT (Mito-CMT) represents a particularly challenging subset, where genetic mutations impact the mitochondria—often referred to as the powerhouse of the cell. For those living with Mito-CMT,...
Research Opportunity: CMT-SORD
Research Opportunity: CMT-SORD I am writing to you today because there is a research opportunity you may be eligible for. When you joined HNF’s Global Registry for Inherited Neuropathies (GRIN), you agreed to be contacted regarding these opportunities. Since 2001, the...
Featured Webinars
Webinar: Making Sense & Science of CMT Symptoms
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?
CMT THRIVE Webinar – Cannabis & Neuropathy Webinar
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.
Active Hands
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.
CMT-Connect Pain Webinar
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
UPCOMING EVENTS
2024 CMT Roadshow Coming to a City Near You?
Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank
Virtual Chair Yoga, Healthy Heart & Backs to the Mat
Virtual Chair Yoga, Healthy Heart & Backs to the Mat