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NEW Movement is Medicine™ Virtual Platform

FREE CMT Fitness Classes & More!

$100,000 CMT2A Match

Double Your Impact on Important Research

Double Your Donation!

HNF Impact Stories

Videos: How HNF is making a REAL difference

CMT & COVID-19

New Vaccination Statement & More

CMT-Webinars

Watch Here!

Nutrition For The Nervous System

How does what we eat affect our nervous system and common CMT symptoms?
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CMT Research

HNF Presents Research Findings at Three Prestigious Conferences

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Meet the Kohlers

GDAP1 & What's Ahead for Gene Therapy

Welcome To The

Hereditary Neuropathy Foundation

Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.

Patients

Patients

Healthcare Providers

Medical Professionals

Research/Industry

Research/Industry

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Get Involved

Your Voices Were HEARD: Watch HNF’s Externally-led Patient-Focused Drug Development Meeting  ~ Click Here

Latest News From HNF

New Study Measures Progression of CMT1A Nerve Impairment

New Study Measures Progression of CMT1A Nerve Impairment

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Interim Analysis from the Ongoing Open-Label Phase III Extension Study Shows Sustained Benefits of PXT3003 for Patients with Charcot-Marie-Tooth Disease Type 1A (‘CMT1A’)

Interim Analysis from the Ongoing Open-Label Phase III Extension Study Shows Sustained Benefits of PXT3003 for Patients with Charcot-Marie-Tooth Disease Type 1A (‘CMT1A’) New results suggest good safety profile and sustained efficacy of PXT3003 as measured with the...
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Meet HNF’s Newest International Board Member, Natalia Salejko

Natalia, her family, and her growing team are laser-focused on finding a cure for CMT through aggressive fundraising through many channels.

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The Hereditary Neuropathy Foundation is excited to announce the Movement is Medicine™ Fitness Ambassador program!

The Hereditary Neuropathy Foundation is excited to announce the Movement is Medicine™ Fitness Ambassador program! Introduced at the first Movement is Medicine™ Summit in November 2019, HNF’s Movement is Medicine™ initiative was created to promote and support safe...
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SORD: A Lesson in Repurposing Drugs to Treat Hereditary Neuropathy

SORD: A Lesson in Repurposing Drugs to Treat Hereditary Neuropathy GUEST AUTHOR: DAN KNAUSS SORD is a gene that has received a lot of attention lately. International research on SORD has increased greatly since the discovery in 2020 that its mutation causes the most...
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*NEW CMT Fitness Platform

*NEW CMT Fitness Platform

Movement is Medicine™ is an adaptive fitness initiative created by the Hereditary Neuropathy Foundation to encourage and support physical activity and healthy lifestyles among those affected by Charcot-Marie-Tooth (CMT) Disease or other rare conditions. Join for free virtual classes and more!

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Get Involved

Here's How!