My husband now says he doesn’t want children because of the disease. I am devastated. I always dreamed of a big family.
We want our CMT viewers and listeners to feel like they can relate to us, and that it’s perfectly okay to be imperfect!
A gene therapy is within our reach for GDAP1 (CMT4A), an autosomal recessive loss of function disorder and effecting many patients like Owen.
Now thanks to Marvin, my Canine Companions for IndependenceⓇ service dog, my life is so much fuller.
There’s been little research to date into how CMT affects the lives of patients…
CMT-Connect hosted its first webinar on the popular topic of Cannabis this past April.
The Los Angeles native was a natural born swimmer, and has continued his aquatics career throughout his life.
Love, Sex & Disability Revealed in Groundbreaking New Documentary by Ben Duffy
I try to be a positive influence to others in wheelchairs or with disabilities, and hope I can share beauty and magic with those who need it most.
Cannabis Community Care & Research Network (C3RN) is excited to be partnering with HNF to advance Cannabis research, advocate for patients in need, and educate the community!
When we learned of Rob Smith’s story, and how his line of gripping aids came to be, we knew it was one worth sharing.
We interviewed Bernadette to ask her to share her tips and tricks for traveling with a disability.