CMT doesn’t stop artist, Kaileen Selig from painting beautiful pieces using her mouth.
My husband now says he doesn’t want children because of the disease. I am devastated. I always dreamed of a big family.
We want our CMT viewers and listeners to feel like they can relate to us, and that it’s perfectly okay to be imperfect!
A gene therapy is within our reach for GDAP1 (CMT4A), an autosomal recessive loss of function disorder and effecting many patients like Owen.
Now thanks to Marvin, my Canine Companions for IndependenceⓇ service dog, my life is so much fuller.
There’s been little research to date into how CMT affects the lives of patients…
CMT-Connect hosted its first webinar on the popular topic of Cannabis this past April.