Dear Kristin,
My husband now says he doesn’t want children because of the disease. I am devastated. I always dreamed of a big family.
EmBRACE It Podcast with Lainie Ishbia and Estela Lugo
We want our CMT viewers and listeners to feel like they can relate to us, and that it’s perfectly okay to be imperfect!
Hope for the Future for Owen
A gene therapy is within our reach for GDAP1 (CMT4A), an autosomal recessive loss of function disorder and effecting many patients like Owen.
Marvin, my Service Dog
Now thanks to Marvin, my Canine Companions for IndependenceⓇ service dog, my life is so much fuller.
CMT&Me Study
There’s been little research to date into how CMT affects the lives of patients…
Cannabis & CMT Webinar Overview
CMT-Connect hosted its first webinar on the popular topic of Cannabis this past April.
Swimming Towards Success, Jamal Hill
The Los Angeles native was a natural born swimmer, and has continued his aquatics career throughout his life.
“Take A Look At This Heart“
Love, Sex & Disability Revealed in Groundbreaking New Documentary by Ben Duffy
I Am Helena The Mermaid And I Have CMT Disease
I try to be a positive influence to others in wheelchairs or with disabilities, and hope I can share beauty and magic with those who need it most.
Cannabis Community Care & Research Network (C3RN) Partners with HNF
Cannabis Community Care & Research Network (C3RN) is excited to be partnering with HNF to advance Cannabis research, advocate for patients in need, and educate the community!
Designing a Better Grip Active Hands Q&A with Rob Smith
When we learned of Rob Smith’s story, and how his line of gripping aids came to be, we knew it was one worth sharing.
Traveling With A Disability
We interviewed Bernadette to ask her to share her tips and tricks for traveling with a disability.