Painting By Mouth – Kaileen Selig
CMT doesn’t stop artist, Kaileen Selig from painting beautiful pieces using her mouth.
Spinning 4 CMT: My CMT Story
MARC DAIGLE, 34 YEARS-OLD HOMETOWN: ST. CHARLES, MO CURRENTLY: NEW YORK CITY My CMT Story I have been an active person my entire life. I’ve completed 6 marathons, 2 Ironmans, 2 half Ironmans and multiple other races. In 2016 while I was training for the NYC...
Rishi Sharma CMT 2A Wheelchair Rugby
I am Rishi and I have CMT2A. I was first diagnosed at two years-old. When my parents asked what could be done, they got the famous and horrific answer so many of us have gotten, “nothing can be done and there is no treatment. The disease is progressive and will only...
Meet the Kohler Family: Alana has GDAP1
Written by: Ann L. Thompson Her big, warm smile and generous heart can melt metal. She used to dance. “Hi. I’m Alana Kohler. I’m 12 and I have CMT4A.” According to the Hereditary Neuropathy Foundation, CMT4 is a rare subtype of CMT (Charcot-Marie-Tooth disease), a...
Dear Kristin,
My husband now says he doesn’t want children because of the disease. I am devastated. I always dreamed of a big family.
EmBRACE It Podcast with Lainie Ishbia and Estela Lugo
We want our CMT viewers and listeners to feel like they can relate to us, and that it’s perfectly okay to be imperfect!
Hope for the Future for Owen
A gene therapy is within our reach for GDAP1 (CMT4A), an autosomal recessive loss of function disorder and effecting many patients like Owen.
Marvin, my Service Dog
Now thanks to Marvin, my Canine Companions for IndependenceⓇ service dog, my life is so much fuller.
CMT&Me Study
There’s been little research to date into how CMT affects the lives of patients…
Cannabis & CMT Webinar Overview
CMT-Connect hosted its first webinar on the popular topic of Cannabis this past April.
Swimming Towards Success, Jamal Hill
The Los Angeles native was a natural born swimmer, and has continued his aquatics career throughout his life.