Teen Survey

Teen Survey

Hereditary Neuropathy Foundation is looking to expand our teen programs for ages 12–18. We hope to build an online community for teenagers and young adults living with CMT, so that they can connect with and learn from each other. We encourage parents and teens to...
Spinning 4 CMT: My CMT Story

Spinning 4 CMT: My CMT Story

MARC DAIGLE, 34 YEARS-OLD HOMETOWN: ST. CHARLES, MO CURRENTLY: NEW YORK CITY My CMT Story I have been an active person my entire life. I’ve completed 6 marathons, 2 Ironmans, 2 half Ironmans and multiple other races.  In 2016 while I was training for the NYC...
Rishi Sharma CMT 2A Wheelchair Rugby 

Rishi Sharma CMT 2A Wheelchair Rugby 

I am Rishi and I have CMT2A. I was first diagnosed at two years-old. When my parents asked what could be done, they got the famous and horrific answer so many of us have gotten, “nothing can be done and there is no treatment. The disease is progressive and will only...