I Am Helena The Mermaid And I Have CMT Disease
I try to be a positive influence to others in wheelchairs or with disabilities, and hope I can share beauty and magic with those who need it most.
Cannabis Community Care & Research Network (C3RN) Partners with HNF
Cannabis Community Care & Research Network (C3RN) is excited to be partnering with HNF to advance Cannabis research, advocate for patients in need, and educate the community!
Designing a Better Grip Active Hands Q&A with Rob Smith
When we learned of Rob Smith’s story, and how his line of gripping aids came to be, we knew it was one worth sharing.
Traveling With A Disability
We interviewed Bernadette to ask her to share her tips and tricks for traveling with a disability.
Meet Alana Kessler, MS RDN E-RYT: Nutritionist, Dietitian & Wellness Expert
Are all of your CMT symptoms really CMT symptoms?
Meet Lainie Ishbia Speaker – Behavioral Health & CMT
Meet Lainie Ishbia who will be speaking during the Voice of the Patient Weekend about behavioral health & CMT.
Meet Linda Crabtree: Author of “CMT and Me”
An intimate 75-year journey of love, loss and refusal to surrender to a disabling disease.
CMT Careers: No Piece Of Cake
Sometimes physical challenges can dictate job and career paths.
Breathing Problems? What Do They Mean, Breathing Problems?
Though CMT is rarely fatal, respiratory complications are one of the ways it’s possible to die from CMT.
Tips for Living with CMT
Living with CMT can be a challenging journey. Here are some helpful tips.
Tips on Managing Chronic Pain
Did you know? More than 130 million Americans suffer from chronic pain. Chronic pain is a serious problem that shouldn’t be ignored. If you are experiencing chronic pain, it’s important to discuss your physical and emotional symptoms related to your pain with all...
Tips For Living With Charcot-Marie-Tooth During The Holidays
CMT patients can give themselves the best opportunity to stay healthy and happy this holiday season with these helpful tips.