HNF is Now Recruiting Patients for New Gene Therapy Research Projects
HNF has selected its first three types of CMT based on their potential for success…and we need your help!
Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program
The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride.
Help Support HNF with the RoundUp app
HNF has partnered with an app called RoundUp that allows users to donate the change to support CMT research.
HNF Announces The Second Pediatric Center of Excellence for CMT
HNF’s 2nd Pediatric Center of Excellence for CMT is located at the Ann and Robert H. Lurie Children’s Hospital of Chicago.
HNF Featured in Rare Neurological Disease Special Report
HNF is proud to announce that for the fifth year in a row, we have been featured in the annual Rare Neurological Disease Special Report.
StarWise Therapeutics & HNF Form A Strategic Alliance to Bring a NextGen HDAC6 Drug Therapy to CMT2A (MFN2) Patients
HNF has been committed to funding HDAC inhibitor research since 2014.
CMT On The Cloud
HNF takes action and joins genomics revolution for CMT and rare forms of IN.
Exciting News For The CMT Patient Community
Exciting news for the CMT patient community with the first potential treatment ever!
HNF On The Road
HNF presenting and attending prestigious conferences worldwide.
HNF Launches Online Clinical Study
HNF launches GRIN with 4 online clinical studies that are important as we continue with our therapy development pipelines.
A Letter From HNF’s CEO/Founder
2018 was a pivotal year for the Hereditary Neuropathy Foundation (HNF) and the entire Charcot-MarieTooth (CMT) Community.
HNF Partners with True Reply, the Future of Data Collection: Voice Activated Technology (VAT)
True Reply’s Voice Activated Technology is an accessible and innovative new platform that captures the patient’s experience with CMT in their own words.