Become a Certified CMT-FOM Clinical Evaluator at the HNF Clinical Trial Readiness Summit The...
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Research
Total posts in Category: 99
MDA Awards Grant to HNF for Groundbreaking Digital Wearable Study on CMT!
Exciting news for the Charcot-Marie-Tooth (CMT) community! The Hereditary Neuropathy Foundation...
7 Reasons You Can’t Miss the Nashville CMT Summit
Mark your calendars for April 24–26, 2025, because the Nashville CMT Summit is bringing the...
CMT Breakthrough: FDA Grants Orphan Drug Status to NMD670
NMD670, has been granted Orphan Drug Designation (ODD) by the U.S. Food and Drug Administration (FDA)
How Does CMT Affect You?
Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!
HNF participates in inaugural Critical Path Institute (C-Path) Global Impact Conference in Washington, DC
Hereditary Neuropathy Foundation (HNF) is proud to announce that Founder and CEO Allison Moore...
HNF Awards the inaugural HNF Clinical Translation Fellowship
HNF Awards the inaugural HNF Clinical Translation Fellowship in the amount of $170,000 to Kayla...
Digital Health Technologies for Charcot-Marie-Tooth (CMT) Disease
Digital Health Technologies for Charcot-Marie-Tooth (CMT) DiseasePatients attending the Clinical...
NEW CMT Summit Alert! Launch into CMT Clinical Trial Readiness with HNF!
Join us for HNF 2024 CMT Clinical Trial Readiness Summit. To be held June 7&8th in San Diego, CA.
2025 CMT Roadshow Coming to a City Near You?
Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank
Breaking News for SORD Deficiency Patients
The INSPIRE trial is a Phase 3 double-blind placebo-controlled registrational study evaluating the effect of once-daily (QD) oral govorestat (AT-007) in 56 patients aged 16-55 with SORD Deficiency in the US and Europe.
HNF’s CMT Genie: Because genetic testing for CMT has never been more critical
Collaborative efforts between researchers, healthcare providers, and patients, facilitated by the Hereditary Neuropathy Foundation, has created a synergy that has accelerated the pace of discovery.
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Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (2)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (38)
GRIN Patient Registry (39)
HNF Team (10)
Industry (6)
Living with CMT (80)
Media (1)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (5)
Clinical Trials (23)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (2)
Genetic Testing (11)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (8)
Nutrition (5)
Occupational Thearpy (2)
Pain (8)
Podcasts (2)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (34)
School & College (7)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (3)
Pediatrics & CMT (13)
Registry (16)
Research (99)
School Outreach Program and Team CMT Kids (2)
Special Events (3)
Bike New York (20)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (29)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (11)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (23)
CMT Type – CMT1B (3)
CMT Type – CMT1X (4)
CMT Type – CMT2A (10)
CMT Type – CMT2C (5)
CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (2)
Ways to Give (4)
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