HNF on the Forefront of Pain Research to Support CMT Patients
Allison Moore, HNF Founder/CEO, along with her team, took action and led the HNF groundbreaking CMT pain initiative to help the community.
Potential Novel Treatment for a Rare Form of Charcot-Marie-Tooth (CMT) Neuropathy
In 1998 Dr. Florian Thomas met a five-generation family with hereditary neuropathy leading to a research effort now entering its third decade.
CMT&ME APP Adds New Medical Profile
The CMT&ME app has updated the research app to include a brand new medical profile.
HNF tackles the hidden mysteries behind the genetic diagnosis of CMT mitochondrial diseases
C12orf65 gene, a rare form of CMT also known as Leigh Syndrome is robbing young children of a normal life even beyond the classic CMT symptoms.
Won’t You Please Consider A Year End Gift?
Learn the top 15 ways the Hereditary Neuropathy Foundation put your generous donations to work for you this year.
PNS, It’s A Global Effort
Where do the top CMT researchers in the world unite to share leading-edge research? The Peripheral Nerve Society (PNS) meeting!
HNF & Inspire Present Poster at Global Genes 2019 Rare Drug Development Symposium
In 2009, HNF partnered with Inspire, a social network for health, to launch a CMT online support community.
HNF Presents Research Findings at Three Prestigious Conferences
Read more about the research findings presented at these conferences.
HNF is Now Recruiting Patients for New Gene Therapy Research Projects
HNF has selected its first three types of CMT based on their potential for success…and we need your help!
Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program
The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride.
Help Support HNF with the RoundUp app
HNF has partnered with an app called RoundUp that allows users to donate the change to support CMT research.
HNF Announces The Second Pediatric Center of Excellence for CMT
HNF’s 2nd Pediatric Center of Excellence for CMT is located at the Ann and Robert H. Lurie Children’s Hospital of Chicago.