Research

HNF – Acceleron Pharma Collaboration Highlights

by Courtney | Dec 15, 2018 | Research

HNF and Acceleron Pharma have been collaborating since January, 2016. Acceleron Pharma is a ”clinical stage biopharmaceutical company.”

HNF On The Road

by Courtney | Dec 14, 2018 | Research

HNF presenting and attending prestigious conferences worldwide.

HNF Launches Online Clinical Study

by Courtney | Dec 13, 2018 | Registry, Research

HNF launches GRIN with 4 online clinical studies that are important as we continue with our therapy development pipelines.

A Letter From HNF’s CEO/Founder

by Allison Moore | Dec 10, 2018 | Research

2018 was a pivotal year for the Hereditary Neuropathy Foundation (HNF) and the entire Charcot-MarieTooth (CMT) Community.

HNF Partners with True Reply, the Future of Data Collection: Voice Activated Technology (VAT)

by Courtney | Dec 8, 2018 | Research

True Reply’s Voice Activated Technology is an accessible and innovative new platform that captures the patient’s experience with CMT in their own words.

Join GRIN! About The Global Registry for Inherited Neuropathies

by Joy Aldrich | Oct 29, 2018 | Registry, Research

Help us to improve outcome measures, develop biomarkers and improve patient care by joining the Global Registry for Inherited Neuropathies

HNF Announces The First Pediatric Centers of Excellence for CMT

by Allison Moore | Oct 22, 2018 | Research

There are those situations in life where you are destined to meet and for me, meeting Dr. Jahannaz Dastgir — “Naz for short” — was one of them.

HNF Joins Inherited Neuropathy Consortium

by Allison Moore | Oct 15, 2018 | Research

HNF would like to announce, with great pleasure, that it has been invited to participate in the Inherited Neuropathy Consortium (INC), one of 22 groups under the Rare Diseases Clinical Research Network.

Cannabis Community Care & Research Network (C3RN) Partners with HNF

by Joy Aldrich | Oct 11, 2018 | Living with CMT, Research

Cannabis Community Care & Research Network (C3RN) is excited to be partnering with HNF to advance Cannabis research, advocate for patients in need, and educate the community!

HNF Presents at RARE Patient Advocacy Summit Hosted by Global Genes®

by Joy Aldrich | Oct 1, 2018 | Research

The Annual RARE Patient Advocacy Summit, hosted by Global Genes, is in its seventh year and will take place on October 3-4 at the Hotel Irvine in Irvine, California.