The Global Registry for Inherited Neuropathies (GRIN) powers the Hereditary Neuropathy Foundation’s patient-centered research and drug discovery initiatives. Leading Charcot-Marie-Tooth advocacy organization’s innovative platform plays a critical role in its mission.
GRIN has played a critical role in identifying important issues related to the CMT patient experience, revealing new areas to explore and research.
Allison Moore, HNF Founder/CEO, along with her team, took action and led the HNF groundbreaking CMT pain initiative to help the community.
In 1998 Dr. Florian Thomas met a five-generation family with hereditary neuropathy leading to a research effort now entering its third decade.
The CMT&ME app has updated the research app to include a brand new medical profile.
C12orf65 gene, a rare form of CMT also known as Leigh Syndrome is robbing young children of a normal life even beyond the classic CMT symptoms.
Learn the top 15 ways the Hereditary Neuropathy Foundation put your generous donations to work for you this year.
Where do the top CMT researchers in the world unite to share leading-edge research? The Peripheral Nerve Society (PNS) meeting!
In 2009, HNF partnered with Inspire, a social network for health, to launch a CMT online support community.