Allison Moore, HNF Founder/CEO, along with her team, took action and led the HNF groundbreaking CMT pain initiative to help the community.
In 1998 Dr. Florian Thomas met a five-generation family with hereditary neuropathy leading to a research effort now entering its third decade.
The CMT&ME app has updated the research app to include a brand new medical profile.
C12orf65 gene, a rare form of CMT also known as Leigh Syndrome is robbing young children of a normal life even beyond the classic CMT symptoms.
Learn the top 15 ways the Hereditary Neuropathy Foundation put your generous donations to work for you this year.
Where do the top CMT researchers in the world unite to share leading-edge research? The Peripheral Nerve Society (PNS) meeting!
In 2009, HNF partnered with Inspire, a social network for health, to launch a CMT online support community.
Read more about the research findings presented at these conferences.
HNF has selected its first three types of CMT based on their potential for success…and we need your help!
The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride.
HNF has partnered with an app called RoundUp that allows users to donate the change to support CMT research.
HNF’s 2nd Pediatric Center of Excellence for CMT is located at the Ann and Robert H. Lurie Children’s Hospital of Chicago.