She is at it, again! Jenny Decker’s “Just a Lap” circumnavigating the globe In 2016, Jenny kayaked...
Blog Category
Faces of CMT
Total posts in Category: 1
Jaxson’s Shotguns & Guitars
Thank you to everyone who attended this fun event with music, shoes, and plenty of shotguns, for Jaxson’s Cure.
Battersby Lab Donor Story: Fighter Moms Donate to Vital Research into Mitochondrial Diseases
Battersby Lab Donor Story Fighter Moms Donate to Vital Research into Mitochondrial Diseases
Meet Bosco
Meet Bosco, Zach Houliares service dog. Learn more about how service dogs can help those living with CMT!
Jaxson’s Clay Shoot 2021
Jaxson’s Clay Shoot 2021 Image gallery
“Grow or Mow” A Sheer Success!
Brandon, his wife, and Alana would host a virtual ‘Mow or Grow’ fundraiser with each $1 vote going towards CMT research.
Meet Addie “The Face of the CMT Medical Journal”
New Study Measures Progression of CMT1A Nerve Impairment
Mouse Models of Human CNTNAP1 Mutations: Strategies to Rescue and Restore Functions
Research with the Department of Cellular and Integrative Physiology UT Health San Antonio, TX
Act of Kindness: From Strangers to Instant Friends
On October 14, 2020, Winter School athletes in Wisconsin hit the Tuscobia Trail to raise much needed funding for HNF’s gene therapy program in support of Alana Kohler.
Jaxson’s Spooky Shoot 2020
Thank you to everyone who attended this family-friendly event with costumes. Check out the photo gallery!
The Miracle We’ve Been Praying For!
Alana Kohler’s story of having CMT4A.
Meet the Kohler Family: Alana has GDAP1
Alana Kohler’s story with CMT4A.
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