Select Page
Summit Panelist Spotlight: Dr. Steven Gray

Summit Panelist Spotlight: Dr. Steven Gray

Dr. Steven J. Gray is an Assistant Professor in the Dept. of Ophthalmology, U. of N. Carolina at Chapel Hill. He is also an investigator in the UNC Gene Therapy Center and Carolina Institute for Developmental Disabilities. Dr. Gray was previously a Post Doc at UNC and...
Summit Panelist Spotlight: Bernadette Scarduzio

Summit Panelist Spotlight: Bernadette Scarduzio

My name is Bernadette Scarduzio and I’m a CMT patient and advocate! I reside in Drexel Hill, PA with my 2 dogs. I’m proud to say I’ve been working for the Hereditary Neuropathy Foundation for almost 3 years now. I started out as a volunteer for HNF,...
Summit Panelist Spotlight: John Maddox

Summit Panelist Spotlight: John Maddox

John is Founder and Managing Director of Infusion Pharma Consulting LLC, a leading business strategy consultancy focused on the Orphan Drug and Hospital Therapeutics. Founded in 2003, the company serves clients worldwide ranging from start-ups to Top 5 companies. John...
Summit Panelist Spotlight: Dr. Xinliang Albert Liu

Summit Panelist Spotlight: Dr. Xinliang Albert Liu

Dr. Xinliang “Albert” Liu, PhD, is an assistant professor in the Department of Health Management and Informatics at the University of Central Florida. His research focuses on health services utilization, costs, quality of care, and performance evaluation of healthcare...
Summit Panelist Spotlight: Joy Aldrich

Summit Panelist Spotlight: Joy Aldrich

Joy Aldrich, CMT Advocacy Director, joined HNF in February 2015 to focus on the growth of HNF’s online patient support community. Joy and her husband, Toby, live in Seattle, WA, with their beloved yellow lab, Charley, and adopted chocolate lab, Tobydog (he came with...
Summit Speaker Spotlight: Allison Moore

Summit Speaker Spotlight: Allison Moore

Allison Moore founded HNF in 2001 in an effort to improve the quality of life for people with Charcot-Marie-Tooth. She spearheaded the foundation after a hospital mishap where she was treated with medications that exacerbated her CMT symptoms and made her legs weak...
Summit Speaker Spotlight: Dr. Timothy R. Coté

Summit Speaker Spotlight: Dr. Timothy R. Coté

Dr. Timothy R. Coté is a leading national regulatory expert in orphan drug development. With 23 years of Federal service at the FDA, NIH, and CDC, Dr. Coté recently served as the Director of the FDA Office of Orphan Products Development (OOPD) from Sept 2007 through...
Summit Panelist Spotlight: Dr. David Walk

Summit Panelist Spotlight: Dr. David Walk

David Walk, M.D. trained in neurology at the University of Chicago and has been at the University of Minnesota since 1999. His current clinical and research areas of focus are neuropathy, particularly small fiber neuropathy and CMT, and ALS. He directs the University...
Summit Speaker Spotlight HNF’s CSO Sean Ekins

Summit Speaker Spotlight HNF’s CSO Sean Ekins

Leaders in Charcot-Marie-Tooth research need to be progressive visionaries, willing and able to push the boundaries to explore every opportunity available to advance therapeutics and clinical trials for CMT. HNF has the great honor to have Dr. Sean Ekins lead our...
Summit Panelist Spotlight Matt Downing

Summit Panelist Spotlight Matt Downing

Participating in a clinical trial is an invaluable way to get involved in helping the research community cure Charcot-Marie-Tooth (CMT) and related inherited neuropathies (INs). Pharnext, a French pharmaceutical company, has recently opened the first two U.S. trial...