DAY #2 8:30am: Check-in & Breakfast 9:00 - 10:00am: Panel Discussion: Revolutionizing Clinical...
Blog Category
CMT Summit
Total posts in Category: 53
CMT Summit Session Topic: Is CMT Surgery Right for You?
Dr. Pfeffer will offer complimentary in-person surgery consultations at our summit.
NEW CMT Summit Alert! Launch into CMT Clinical Trial Readiness with HNF!
Join us for HNF 2024 CMT Clinical Trial Readiness Summit. To be held June 7&8th in San Diego, CA.
HNF Hears You
The HNF 2018 Patient-Centered Behavioral Health Summit was one-of-kind: HNF launched a new curriculum.
Voice of the Patient Weekend: Expanding the Science of Patient Input in Drug Development and Tapping into Personal Potential
The time for our community to shine is coming as we prepare for the Patient-Focused Drug-Development Meeting on September 28, 2018!
Allison Moore Speaker at 2018 Rare Patient Advocacy Symposium
On May 19, HNF participated in the Rare Patient Advocacy Symposium in partnership with Penn Medicine Orphan Disease Center and Global Genes.
Why I’ll be attending the “Voice of the Patient Weekend” A Patient’s Perspective
I am attending HNF’s “Voice of the Patient” Weekend 2018 to tell the FDA and other stakeholders how TRPV4 HN impacts my life.
Meet Lainie Ishbia Speaker – Behavioral Health & CMT
Meet Lainie Ishbia who will be speaking during the Voice of the Patient Weekend about behavioral health & CMT.
What Is An Externally-Led PFDD Meeting?
PFDD meetings integrate patient insights into the drug development process.
Overview of the Patient-Centered CMT/HNPP Pain Summit 2017
On November 3, 2017, nearly 100 participants gathered in Boston for HNF’s Patient-Centered CMT/HNPP Pain Summit.
We Care About Research for Hereditary Neuropathy with Liability to Pressure Palsies (HNPP)!
HNPP is the second most common form of CMT/IN and may affect approximately 15,000 in the USA. Help us find a cure today!
Hereditary Neuropathy Foundation Announces Patient-Centered CMT/HNPP Pain Summit
HNF is proud to announce that our annual CMT Summit will include the HNPP community Friday, November 3, 2017, in Cambridge, Massachusetts.
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