Grab your shoes and spin CRANK Style NYC!
When: Saturday, September 27, 2014
Where: 1658 3rd Avenue New York, NY 10128 (between 92nd & 93rd Street Upper East Side)
Time: 1:00 – 3:00 pm
Blog Category
Special Events
Total posts in Category: 3
NYC bike ride to highlight rare neurological disorder
Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.
HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014
HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour
Joe Torello, Music Man
While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.
Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York
The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.
Hampton’s Spin 2012: Booming Success
Rainy weather in New York didn’t deter 125 people from attending The Hereditary Neuropathy Foundation’s 4th Annual Hampton’s Spin Event on July 28 to raise awareness and research funds for Charcot-Marie-Tooth.
Personal Profile: Nick Zappola
In an effort to connect with and support other people who have Charcot-Marie-Tooth, Nick developed his own website.
A Great Ride at Bike New York
“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th
Team CMT leader finishes second at Boston Marathon
Congratulations to Chris Wodke, manager of Team CMT, who placed second in the Mobility Impaired Division of the 2012 Boston Marathon on April 16!
First Spin-a-thon of 2012 a Smashing Success!
In addition to donating space for the Spin-A-Thon and brunch, The Club encouraged attendees to make use of all the facilities for the day.
April 16, 2012: Team CMT Leader to Run Boston Marathon
As manager of Team CMT and in partnership with The Hereditary Neuropathy Foundation, Chris intends to use this opportunity to raise awareness about CMT on a grander scale.
May 5, 2013: Five Boro Bike Tour
HNF is thrilled to have been chosen this year as a Charity Partner for the TD Bank Five Boro Bike Tour.
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Faces of CMT – HNPP Fund (3)
Faces of CMT – James (2)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
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Gene Therapy (1)
GRIN Patient Registry (46)
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Living with CMT (89)
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Medical professionals (3)
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Optic Hereditary Neuropathy (5)
Our Impact (10)
Clinical Trials (24)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
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Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
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Pediatrics & CMT (13)
Registry (19)
Research (106)
School Outreach Program and Team CMT Kids (3)
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Bike New York (21)
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Spin-a-thon (7)
TCS New York City Marathon (9)
Team CMT Members (64)
The CMT Genie (6)
TRIAD (31)
TRIAD – Clinical Trial Readiness (6)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
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University of Miami (1)
University of San Antonio Texas (1)
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Applied Therapeutics (12)
Pharnext (10)
Rarebase (4)
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CMT Type – CMT1X (6)
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CMT Type – GAN (5)
CMT Type – HDAC6 (1)
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CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (12)
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