Love, Sex & Disability Revealed in Groundbreaking New Documentary by Ben Duffy
Blog Category
Living with CMT
Total posts in Category: 78
I Am Helena The Mermaid And I Have CMT Disease
I try to be a positive influence to others in wheelchairs or with disabilities, and hope I can share beauty and magic with those who need it most.
Cannabis Community Care & Research Network (C3RN) Partners with HNF
Cannabis Community Care & Research Network (C3RN) is excited to be partnering with HNF to advance Cannabis research, advocate for patients in need, and educate the community!
Designing a Better Grip Active Hands Q&A with Rob Smith
When we learned of Rob Smith’s story, and how his line of gripping aids came to be, we knew it was one worth sharing.
Traveling With A Disability
We interviewed Bernadette to ask her to share her tips and tricks for traveling with a disability.
Meet Alana Kessler, MS RDN E-RYT: Nutritionist, Dietitian & Wellness Expert
Are all of your CMT symptoms really CMT symptoms?
Meet Lainie Ishbia Speaker – Behavioral Health & CMT
Meet Lainie Ishbia who will be speaking during the Voice of the Patient Weekend about behavioral health & CMT.
Meet Linda Crabtree: Author of “CMT and Me”
An intimate 75-year journey of love, loss and refusal to surrender to a disabling disease.
CMT & Finances
Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services.
CMT Careers: No Piece Of Cake
Sometimes physical challenges can dictate job and career paths.
Breathing Problems? What Do They Mean, Breathing Problems?
Though CMT is rarely fatal, respiratory complications are one of the ways it’s possible to die from CMT.
Q&A with Dakota Reilly Impact of AlterG on Charcot-Marie-Tooth
Learn how this CMT1A patient uses the AlterG treadmill to manage her CMT symptoms.
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