The Hereditary Neuropathy Foundation is thrilled to announce the launch of the first online health care provider directory that has ever been offered to this community to include comprehensive testing to certify health care professionals (HCPs).
Blog Category
Living with CMT
Total posts in Category: 78
Tips For Living With Charcot-Marie-Tooth During The Holidays
CMT patients can give themselves the best opportunity to stay healthy and happy this holiday season with these helpful tips.
One More Rep: Ed Moore Is Working Out For Charcot-Marie-Tooth Awareness
Ed Moore, a Team CMT leader who is committed to spreading awareness of CMT with a pretty creative and bold fundraising strategy.
Charcot-Marie-Tooth Won’t Stop The ‘Karaoke King
Patrick was an accomplished athlete in high school, participating in many sports and even boasting a 85mph fastball. But his deformed feet prevented him from running, eliminating any chance to pursue sports past high school.
Every Voice Makes A Difference: Social Media Awareness For Charcot-Marie-Tooth Disease
it’s so important for you to join The Hereditary Neuropathy Foundation on all of our social media channels.
What It’s Like To Live With Charcot-Marie-Tooth Disease: The Stories Of Those Who Know It Best
The study is a collection of over 80 intimate and candid interviews, painting a vivid picture of those living with CMT. These interviews brought to light a range of different experiences: from devastating and heart-wrenching, to courageous and inspiring.
The Long Road to Diagnosis Renews Dedication to Advocacy
Growing up we called it “Steffi disorder.” My friends and family were as baffled as my expert neurologists. I had been diagnosed with typical Spiral Muscular Atrophy (SMA) as a toddler but never followed its progression; I never seemed to get weaker. My myriad of symptoms was distinctly different than anyone else’s I had ever met in a lifetime living in the neuromuscular community. I thought I might never find my true diagnosis, let alone others who share it with me.
Making a difference in the CMT Community
On May 3rd I will be in New York and participate in the TD Five Boro Bike Tour. I will be riding with Team CMT to raise awareness and help in finding a cure for CMT
Q & A with Andy Heck
Our Q&A for the Winter CMT Update is Andy Heck. Andy has been diagnosed with Charcot-Marie-Tooth since four and doesn’t let CMT stop him for living his life to the fullest!
Charcot-Marie-Tooth Frequently Asked Questions
Charcot-Marie-Tooth Frequently Asked Questions: Learn more about the most commonly inherited peripheral neuropathy affecting approximately 1 in 2500 adults.
Living with CMT: Key Topics
There are a number of adaptive aids that can help make everyday tasks easier. This section lists just a few of them. Some of these items can be adapted from materials at home, others must be purchased.
Embrace the Brace: A Mother’s Perspective on Helios
We had the highest of hopes that these custom braces would be the difference between night and day for Dakota.
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