CMT Summit

The Hereditary Neuropathy Foundation is currently seeking 10 second video clips of CMT patients under the age of 16, performing daily activities.

Bracing is used in the management Charcot-Marie-Tooth to support and hold a part of the body compromised by muscle weakness, muscular atrophy, sensory impairment. Bracing is also used to help correct skeletal deformity.

Dr. Arnold is currently President & CEO, Arnold Consultancy & Technology LLC, eadquartered in New York City, and Practice Lead, HEOR, Quorum Consulting, Inc., based in San Francisco, CA

With respect to CMT, Dr. Baker’s team has collaborated with Drs. Michael Sereda and Klaus Nave of the Max Planck Institute for Experimental Medicine (MPI) to utilize their CMT1A transgenic rat and established the initial CMT1A rat colony in the United States.

Dr. Steven J. Gray is an Assistant Professor in the Dept. of Ophthalmology, U. of N. Carolina at Chapel Hill.

John is Founder and Managing Director of Infusion Pharma Consulting LLC, a leading business strategy consultancy focused on the Orphan Drug and Hospital Therapeutics

Dr. Liu shares the consensus that CMT is a lesser known disease and more research is needed to shed light on the experiences of patients with CMT.

After her genetic diagnosis, Joy connected with HNF for advice on AFOs and a letter writing campaign to tell family and friends about her diagnosis.

Allison Moore founded HNF in 2001 in an effort to improve the quality of life for people with Charcot-Marie-Tooth.

HNF has invited Dr. Coté to lead the discussion on Public Policy. We will cover issues such as better AFO (leg-bracing) options, fast-tracking drug discoveries and clinical trials, applying for disability benefits, Medicare/Medicaid and services.