Monthly Archives: March 2012

April 16, 2012: Team CMT Leader to Run Boston Marathon

When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is… Continue reading

Personal Profile: Di Billick–Actress, Model, Inspiration

Di Billick is describing her frustration. “When I’m having difficulty walking down the street and people behind me get annoyed because I’m slowing them down, they pass and throw me a nasty look. But I can also tell they are… Continue reading

Personal Stories: Barb Vonada, triathlete, veteran and more!

Like so many with Charcot-Marie-Tooth (CMT), Barb Vonada of Virginia tries to focus on what she can do, not on what she can’t. Recently, the 42 year old mom of three joined Team CMT- Richmond hoping to spread awareness and… Continue reading

May 5, 2013: Five Boro Bike Tour

HNF is thrilled to have been chosen this year as a Charity Partner for the TD Bank Five Boro Bike Tour.  This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research… Continue reading

Saturday, Nov 10, 2012: Richmond Half-Marathon Fundraiser


The Richmond, Va branch of Team CMT, Richmond, VA will participate in the American Family Fitness Half Marathon on Saturday, November 10, 2012.  Team CMT will be running on behalf of the Hereditary Neuropathy Foundation to raise awareness of… Continue reading

Thursday Sept. 27, 2012: Seventh Annual Golf Outing

We are pleased to announce the Hereditary Neuropathy Foundation’s Seventh Annual Golf Outing to take place at a NEW venue – the prestigious North Hills Country Club in Manhasset, New York on Thursday, September 27, 2012. Shotgun start at 11:30am.… Continue reading

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