¡La Fundación de Neuropatía Hereditaria se complace en anunciar que hemos recibido la Beca de...
Blog Archive
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CMT Research Update: Pediatric Ankle And Gait Function
HNF TRIAD Academic Partner Connecticut Children’s Publishes Results of CMT Pediatric Natural...
HNF Awarded 2023 Health Equity in RARE Impact Grant
HNF Awarded 2023 Health Equity in RARE Impact Grant For Spanish CMT PSA Awareness Campaign with Diagnosis & Patient Care Toolkit. The Hereditary Neuropathy Foundation is thrilled to announce that we are a recipient of the Global Genes Health Equity in RARE Impact Grant!
Cambridge-led natural history study identifies MTRFR/C12orf65 deficiency to improve diagnosis and therapy development
This research will potentially show a method that may be quicker and better at identifying...
Hereditary Neuropathy Foundation Re-Launches One-of-A-Kind Patient Registry for Charcot-Marie-Tooth Disease Research
Hereditary Neuropathy Foundation Re-Launches One-of-A-Kind Patient Registry for...
CMT-Associated Genes and Their Related Subtypes: The Definitive Guide
Kenneth’s groundbreaking book, CMT-Associated Genes and Their Related Subtypes: The Definitive...
Charcot-Marie-Tooth Virtual Support Group
The support group offers time to participate in a variety of both educations & open discussion meant to help everyone engage with others on similar journeys.
emBRACE it™ Episode #43
How do we honor the inevitable grief that comes with disability and establish healthy boundaries...
CMT Safe Space – Best Shoes for High-Arched Feet?
CMT Safe Space - Best Shoes for High-Arched Feet? Thanks to all those who joined last week! Check...
CMT Highlight Reel: How does CMT data drive research using GRIN?
Kenneth Raymond provides an overview of why sharing CMT symptoms in GRIN is so important!
CMT Beyond Social Media: What is CMT Safe Space!
When searching for support and answers to CMT questions, social media can be very beneficial....
Hypotonia & CMT
Hypotonia, or low muscle tone, can be caused by a variety of factors, including genetic conditions like Charcot-Marie-Tooth (CMT) disease
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