One Woman’s Success with Surgery
One Woman’s Success with Surgery
The only thing Sarah Clauss has given up because of Charcot-Marie-Tooth (CMT) is waterskiing. “I live on the lake so I attempted waterskiing but…,” jokes the 25 year old, Lake Wallenpaupack, Pennsylvania resident, “it wasn’t… Continue reading
BERNADETTE SCARDUZIO: The Face of Charcot-Marie-Tooth Disease
BERNADETTE SCARDUZIO:
The Face of Charcot-Marie-Tooth Disease
BY DEBORAH A. PIERRO of I.D.E.A.L Magazine
In mid-October 2012, I had the opportunity to interview Bernadette Scarduzio (Bern). She is a lovely young woman who suffers from Charcot-Marie-Tooth (CMT), an inherited disease… Continue reading
HNF Media Partner: World Orphan Drug Congress USA
In the world of rare disease and orphan drug research, it’s incredibly important for patient groups and industry to collaborate in order to best serve the patient community. With a widespread and niche patient base, pharma and biotech need to… Continue reading
Women’s Group Blog for CMT Awareness: The Fab Five
About this time last year, Melissa Arakaki of Spanish Fork, UT told us what prompted her to write to Utah Gov. Herbert on behalf of CMT Awareness Month. After connecting through Facebook with other people who have Charcot-Marie-Tooth (CMT), Melissa… Continue reading
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