Hereditary Neuropathy Foundation BlogStay up to date with our most recent news and updates on CMT and INs.
On May 19, HNF participated in the Rare Patient Advocacy Symposium in partnership with Penn Medicine Orphan Disease Center and Global Genes.read more
On May 6, 2018, Team CMT conquered 42 miles of the TD Bank Five Boro Bike Tour through each of Manhattan’s five boroughs!read more
I am attending HNF’s “Voice of the Patient” Weekend 2018 to tell the FDA and other stakeholders how TRPV4 HN impacts my life.read more
HNF catches up with Team CMT Member Katherine Crandall Symonsread more
HNF is excited to announce that Dr. Lucia Notterpek will Take the Reins as HNF’s New Chief Scientific Officer.read more
HNF is excited to announce the addition of four new board members to our team!read more