Hereditary Neuropathy Foundation Blog
Stay up to date with our most recent news and updates on CMT and INs.
Meet Linda Crabtree: Author of “CMT and Me”
An intimate 75-year journey of love, loss and refusal to surrender to a disabling disease.
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Global Genes To Host The 2018 RARE Patient Advocacy Symposium
Global Genes, in partnership with the University of Pennsylvania School of Medicine Orphan Disease Center, will host the 2018 RARE Patient Advocacy Symposium in Philadelphia on May 19th, 2018.
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HNF’s Landmark Externally-Led Patient-Focused Drug Development Meeting
HNF will be holding a landmark externally-led Patient-Focused Drug Development Meeting for CMT and INs in Washington, D.C. on Friday, September 28, 2018.
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The CMT Community Needs You!
Start the New Year by getting involved and helping HNF conquer CMT. There are many ways you can get involved.
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Em-bracing Fashion with Lainie Ishbia
Meet Lainie Ishbia who created Trend-ABLE to empower women with invisible physical disabilities and challenges.
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Neurology Reviews® & NORD Publish 2018 Rare Neurological Disease Special Report
The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD.
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