Latest News from HNF
Stay up to date with our most recent news and updates on CMT and INs.
Ann Taylor Jones – Covid Nurse Working on the Front Lines
Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.
HNF Collaborates with Italian CMT Organization ACMTRete on the ABCs of AFOs – Now Available in English & Italian!
Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.
Team CMT – 10 Years Strong
“We succeed in enterprises which demand the positive qualities we possess, but excel in those which also make use of our defects." - Alexis de TocquevilleTeam CMT was formed in 2010 and we ran our first race in Brown Deer, Wisconsin, at the end of April,...
Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT) Calling CMT1A Patients Ages 18-75
This study is a new international research project funded by the National Institutes of Health (NIH) called Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT). Dr. David Herrmann at the University of Rochester is the study's Principal...
NEW CMT Stationery by Designer, Dakota Reilly – Blue Bear
Dakota Reilly is a young adult based in New York who has CMT1A. After graduating from the Fashion Institute of Technology and working in the fashion industry, Dakota realized how much she enjoys creating her own products. Since working from home is ideal...
SEPTEMBER IS CMT AWARENESS MONTH 2020 THEME “CMT IS RUFF”
Although we’re not ready to say goodbye to summer, September is fast approaching and the Hereditary Neuropathy Foundation (HNF) is once again ready to take on Charcot-Marie-Tooth (CMT) Disease. We are continuing our mission to increase awareness, raise...