Latest News from HNF
Stay up to date with our most recent news and updates on CMT and INs.
Joy Perry and The Christmas Bow
Joy Perry, CMT patient cast in a new Hallmark Christmas movie “The Christmas Bow.
CMT&Me COMPETITION
Thursday, October 1 – Saturday, October 31 2020Newsletters THIS OCTOBER, RAISE AWARENESS AND RAISE MONEY!It is still CMT Awareness month in Europe. The European patients’ groups we worked with on the development of the CMT&Me app are now raising...
Ann Taylor Jones – Covid Nurse Working on the Front Lines
Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.
HNF Collaborates with Italian CMT Organization ACMTRete on the ABCs of AFOs – Now Available in English & Italian!
Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.
Team CMT – 10 Years Strong
“We succeed in enterprises which demand the positive qualities we possess, but excel in those which also make use of our defects." - Alexis de TocquevilleTeam CMT was formed in 2010 and we ran our first race in Brown Deer, Wisconsin, at the end of April,...
Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT) Calling CMT1A Patients Ages 18-75
This study is a new international research project funded by the National Institutes of Health (NIH) called Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT). Dr. David Herrmann at the University of Rochester is the study's Principal...