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Latest News from HNF

Stay up to date with our most recent news and updates on CMT and INs.

HNF is Now Recruiting Patients for New Gene Therapy Research Projects

HNF has selected its first three types of CMT based on their potential for success…and we need your help!

Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program

The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride.

Help Support HNF with the RoundUp app

HNF has partnered with an app called RoundUp that allows users to donate the change to support CMT research.

HNF Announces The Second Pediatric Center of Excellence for CMT

HNF’s 2nd Pediatric Center of Excellence for CMT is located at the Ann and Robert H. Lurie Children’s Hospital of Chicago.

What Is Fast Track?

The FDA has awarded Fast Track designation to two drugs currently in development for CMT.

Movement is Medicine™ Summit

Movement is Medicine™ Summit

HNF is excited to announce the Movement is Medicine™ Summit, being held at Ability360 Sports & Fitness Center in Phoenix, AZ, on November 8-9.

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