Hereditary Neuropathy Foundation Blog

Stay up to date with our most recent news and updates on CMT and INs.

Allison Moore Speaker at 2018 Rare Patient Advocacy Symposium

On May 19, HNF participated in the Rare Patient Advocacy Symposium in partnership with Penn Medicine Orphan Disease Center and Global Genes.

Thank You and Congratulations To Team CMT Riders

On May 6, 2018, Team CMT conquered 42 miles of the TD Bank Five Boro Bike Tour through each of Manhattan’s five boroughs!

Why I’ll be attending the “Voice of the Patient Weekend” A Patient’s Perspective

I am attending HNF’s “Voice of the Patient” Weekend 2018 to tell the FDA and other stakeholders how TRPV4 HN impacts my life.

Catching up with Team CMT Member Katherine Crandall Symons

HNF catches up with Team CMT Member Katherine Crandall Symons

Dr. Lucia Notterpek to Take the Reins as HNF’s New Chief Scientific Officer.

HNF is excited to announce that Dr. Lucia Notterpek will Take the Reins as HNF’s New Chief Scientific Officer.

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