New Collaboration with the University of North Carolina  at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy

New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy

Gene therapy represents an exciting new frontier being explored for treating a number of diseases. Currently, gene therapy is being used in a clinical trial to treat one of the rare forms of inherited neuropathy (IN), giant axonal neuropathy (GAN). Because of the...
Sunday, 9 April 2017

Sunday, 9 April 2017

Sunday, 9 April 2017 I’m settling in for a stint in the beautiful and majestic Sedona area of Arizona. I’m staying at a campsite in Oak Creek, where the bedroom window of my RV faces the water and the cactus covered hills. As with many folks, one of the draws to this...
RV Tips and Advice: Rick Cole the CMTrv’er

RV Tips and Advice: Rick Cole the CMTrv’er

I am currently at Rusty’s RV Ranch (RV park), which is situated in the desert and surrounded by the Chiricahua Mountains, and conveniently located close to the Chiricahua National Forest. It’s a wonderful place to kick off my time out west, which I have been looking...
TD Bank Five boro Tour: May 7, 2017

TD Bank Five boro Tour: May 7, 2017

Sign up for TD Five Boro Bike Tour Today! For the eighth year in a row, HNF will be participating as a Charity Partner in the 2017 TD Bank Five Boro Bike Tour! We are thrilled to again be a part of this extraordinary event where participants bike through all five New...
Set Sail For CMT: Saturday June 17, 2017

Set Sail For CMT: Saturday June 17, 2017

On June 17, 2017 in New York City, HNF will be kicking off our inaugural Manhattan sunset cruise for a night filled with food, drinks, music and exclusive auction items. Enjoy three levels of dancing, full-service bars, lounges, floor to ceiling windows and...
Disease Awareness Problem

Disease Awareness Problem

Charcot-Marie-Tooth Disease Awareness Problem from Hereditary Neuropathy Foundation on Vimeo. If you walked up to a group of people in your town, your city, your school, or your neighborhood…and asked them if they ever heard about Multiple Sclerosis, the majority...
Neurotoxin Rx wallet card

Neurotoxin Rx wallet card

Individuals affected with neuropathic diseases, such as CMT, may be more vulnerable to the effects of certain medical conditions, stresses, and medications. A small number of medications are known to cause damage to nerves or cause neuropathy. These drugs can act as...
Tips on Managing Chronic Pain

Tips on Managing Chronic Pain

Did you know? More than 130 million Americans suffer from chronic pain. Chronic pain is a serious problem  that shouldn’t be ignored. If you are experiencing chronic pain, it’s important to discuss your physical and emotional symptoms related to your pain with all...
February 2, Day 82

February 2, Day 82

February 2, Day 82 I am about halfway across country and almost 3 months into my solo journey. It’s taken me much longer than anticipated because of my physical issues and some unforeseen circumstances. With the only thing on the horizon being an RV rally in Tucson...

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