Neurotoxin Rx wallet card

Neurotoxin Rx wallet card

Individuals affected with neuropathic diseases, such as CMT, may be more vulnerable to the effects of certain medical conditions, stresses, and medications. A small number of medications are known to cause damage to nerves or cause neuropathy. These drugs can act as...
Tips on Managing Chronic Pain

Tips on Managing Chronic Pain

Did you know? More than 130 million Americans suffer from chronic pain. Chronic pain is a serious problem  that shouldn’t be ignored. If you are experiencing chronic pain, it’s important to discuss your physical and emotional symptoms related to your pain with all...
Day 28: Bradenton, FL

Day 28: Bradenton, FL

Day 34: The time to move on from Bradenton, FL, is drawing near. It’s been a difficult past week. My sister was hospitalized (not CMT-related) and I’ve experienced several extremely difficult days getting around. Nevertheless, I’ve managed to get a fair amount of...
Top 10 Ways to Spread CMT Awareness

Top 10 Ways to Spread CMT Awareness

“You have what?” This is a common response when you tell someone you have Charcot-Marie-Tooth disease. We don’t just have CMT: we have a disease name awareness problem! How can we, together as a community of patients, caregivers, and healthcare professionals, work to...
Day 28: Bradenton, Florida

Day 28: Bradenton, Florida

Day 28: Bradenton, Florida   I’m visiting with my sister and nephew, who both have CMT, and my niece who does not. My sister requires a scooter to get around and help from my nephew while he’s still able to. I try to stay present-minded, but sometimes I cannot...

Holiday greetings to you and your family at this most wonderful time of the year. At HNF, all of us want to express our immense gratitude to you for being a part of this ground-breaking year for the entire CMT community! As I continue to fight for CMT awareness,...

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