We believe that one of the biggest challenges to living with Charcot-Marie-Tooth is the lack of awareness by the general public and the medical community. HNF is dedicated to changing this. Through several important initiatives, HNF provides crucial information and knowledge about CMT to a vast audience.
The National CMT Resource Center
Funded through a cooperative agreement from the Centers for Disease Control and Prevention, HNF launched the National CMT Resource Center in 2011 to provide information, resources and training to those living with CMT, their caregivers, and professionals in the medical and school communities.
School Outreach Program
HNF launched its CMT and Disability School Outreach Program in 2011, using the children’s book, Arlene On the Scene, as a launching pad to foster a greater understanding of difference, disability and CMT. Free school presentations are provided nationwide.
Professional Training and Outreach
HNF offers training and information for health care professionals and others regarding CMT. The National CMT Resource Center provides a wide range of information directed at providers, including a CME course on CMT. HNF also sponsors events and conferences within the medical community in order to increase awareness and disseminate information about CMT.