HNF breaking ground with exciting gait study utilizing new digital technology – ProtoKinetics Zeno Walkway Gait Analysis System
Blog Category
GRIN Patient Registry
Total posts in Category: 22
HNF Presents Research Findings at Three Prestigious Conferences
Read more about the research findings presented at these conferences.
HNF Launches Online Clinical Study
HNF launches GRIN with 4 online clinical studies that are important as we continue with our therapy development pipelines.
Join GRIN! About The Global Registry for Inherited Neuropathies
Help us to improve outcome measures, develop biomarkers and improve patient care by joining the Global Registry for Inherited Neuropathies
10 Ways Participating In GRIN Helps Support CMT/IN Research
HNF’s Global Registry for Inherited Neuropathies (GRIN) is one of our initiatives that supports our commitment and dedication to developing treatments and discovering cures for CMT and other INs.
Top Ten Ways Participating in GRIN Helps Support CMT/IN Research
HNF’s Global Registry for Inherited Neuropathies (GRIN) is one of our initiatives that supports our commitment and dedication to developing treatments and discovering cures for CMT and other INs.
Global Registry For Inherited Neuropathies: Your Questions Answered
Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies.
This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.
Global Registry For Inherited Neuropathies: The Quest For A Genetic Diagnosis
The Hereditary Neuropathy Foundation (HNF) and Hannah’s Hope Fund (HHF) have partnered together to create the Global Registry For Inherited Neuropathies (GRIN).
Global Registry for Inherited Neuropathy (GRIN) Vs the Rare Disease Clinical Research Network (RDCRN)
The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical...
“Fighter Mom’s” Join Forces
Lori Sames and her husband Matt formed Hannah’s Hope Fund (HHF) following their youngest daughter’s diagnosis of Giant Axonal Neuropathy (GAN) in 2008. GAN is the most rare, and one of the most severe, forms of Inherited Neuropathy.
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