If we are to learn more about CMT and the effectiveness of rehabilitation it is worth asking the patient and their caregiver. A recent Italian study by Padua et al recently described a survey of CMT patients and caregivers and their perspectives and perceptions of rehabilitation efficacy and needs.
Blog Archive
education
Arlene is Teaching Tolerance “Staff Pick”
Arlene On the Scene was recently named “Staff Pick” by Teaching Tolerance, an amazing organization dedicated to reducing prejudice, improving intergroup relations and supporting equitable school experiences for our nation’s children.
Hot off the press
Some recent papers on Charcot-Marie-Tooth (CMT) disease go to show that we are steadily and impressively peeling back the complexity of the biology even though it is a relatively common rare disease with several thousand publications on it.
School Outreach Program Update
HNF’s School Outreach Program is having its best year yet, with nearly fifty schools visited in 2012-2013
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Webinars – Newly Diagnosed (1)
Webinars – Nutrition (1)
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Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
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Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (5)
Faces of CMT – Zach (17)
Featured (18)
GRIN Patient Registry (22)
HNF Team (9)
Living with CMT (69)
Medical professionals (2)
Movement Is Medicine (16)
Optic Hereditary Neuropathy (5)
Our Impact (0)
Clinical Trials (11)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (12)
Breathing (3)
Canine Companions (5)
Cannabis (6)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (6)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (6)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (4)
Nutrition (3)
Occupational Thearpy (2)
Pain (6)
Podiatry (4)
PT and Exercise (24)
Research and Critical Trials (12)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (5)
Registry (4)
Research (76)
School Outreach Program and Team CMT Kids (1)
Special Events (0)
Bike New York (18)
Other Events (3)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (58)
The CMT Genie (2)
TRIAD (21)
TRIAD – Clinical Trial Readiness (0)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (2)
Applied Therapeutics (7)
Pharnext (9)
Rarebase (4)
Types of CMT (0)
CMT Type – CMT1A (16)
CMT Type – CMT2A (6)
CMT Type – CMT2C (3)
CMT Type – CMT4A GDAP1 (2)
CMT Type – GAN (4)
CMT Type – HNPP (2)
CMT Type – MTRFR-C12orf65 (3)
CMT Type – SORD Deficiency (5)
Upcoming Events (3)
Ways to Give (3)
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