Participate in an HNF CMT-Connect workshop in your area!

HNF encourages a holistic-educational and empowerment approach to its workshops.  We will provide participants with a safe environment to talk about the emotional dynamics of dealing with a chronic illness.  By acknowledging the physical and emotional challenges patients face on a daily basis, we will encourage and empower participants to be proactive advocates for their care, quality of life, and wellness needs.

Our holistic-educational approach to our support workshops offers participants:

  • A spirit of empowerment to enable members to improve their quality of life
  • Safety, empathy, validation, and much-needed support
  • Factual information and new coping strategies
  • A decreased sense of isolation and alienation for dealing with CMT
  • Interactions with others dealing with similar experiences
  • A sense of community
  • Restoration of a member’s spirit of hope and self-confidence
  • Increased self-awareness and a focus on an individual’s strengths
  • An enlarged social support network

In addition, our findings from these workshops may help to engage research projects to support our community. Quality of life data is critical to implementing evidence-based  clinical studies, which will have an overall positive impact, both physically and emotionally, on patients and families living with CMT.

Questions? Email [email protected]


   Sponsored by Pharnext

Rochester, New York: Tuesday, May 31, 2016 (6:00pm-8:00pm)
EquiCenter
3247 Rush Mendon Road
Honeoye Falls, NY 14472

Long Island, New York:  Friday, June 3, 2016 (7:00pm-9:00pm)
Sachem Library 
150 Holbrook Road
Holbrook, NY 11741

New York City: Tuesday, June 28, 2016 (7:00pm-9:00pm)
WeWork
Floor 9 (Conference Room 9F)
401 Park Avenue
New York, NY 10019

Register today!

 

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