Summit Speaker Spotlight: Dr. Robert Burgess

Summit Speaker Spotlight: Dr. Robert Burgess

We are fortunate to have the leading CMT researchers share their latest progress at the Summit. HNF has invited Dr. Robert Burgess, a member of our scientific advisory board, to present his latest research. Dr. Robert Burgess is a Professor at The Jackson Laboratory...
Summit Speaker Spotlight: Dr. James Nussbaum

Summit Speaker Spotlight: Dr. James Nussbaum

HNF invites Dr. James Nussbaum, PT, PhD, SCS, EMT, to lead us in a discussion on “Gaps in Available Patient Reported Outcomes and Barriers to Therapy Development” at the Summit. Dr. Nussbaum is the Clinical and Research Director of ProHealth & Fitness PT OT, a...
Summit Speaker Spotlight: Tim Boyd From NORD

Summit Speaker Spotlight: Tim Boyd From NORD

The availability of affordable healthcare is an issue that affects each and every one of us. This is even more critical for patients with rare diseases. HNF has partnered with NORD to help us find the solutions and realize a brighter future for those living with CMT...
Summit Speaker Spotlight: Dr. Lucia Notterpek

Summit Speaker Spotlight: Dr. Lucia Notterpek

The Hereditary Neuropathy Foundation is incredibly fortunate to have a group of ambitious and dedicated leaders on the front lines of Charcot-Marie-Tooth research. These inspiring researchers will be presenting their latest studies and what’s on the horizon in CMT...
Summit Panelist Spotlight: Estela Lugo

Summit Panelist Spotlight: Estela Lugo

Estela was diagnosed with CMT when she was just 4 years-old. She resides on Long Island, NY, where she lives with her children, 11 year-old daughter Anabella and 9 year-old son Devin, both CMT-free. Estela also has a sister Melissa, who has CMT. She is a 2001 graduate...
Summit Panelist Spotlight: Kristin Gelzinis

Summit Panelist Spotlight: Kristin Gelzinis

The strength of the CMT community depends on the unwavering commitment of its members. From patients, to caregivers, to researchers and HCPs, we are all in this together to help raise awareness and funds to develop treatments and find a cure. HNF welcomes CMT...
Meet Stefanie Sacks CMT Summit Keynote Speaker

Meet Stefanie Sacks CMT Summit Keynote Speaker

The Hereditary Neuropathy Foundation is proud and privileged to introduce Stefanie Sacks, our keynote speaker at the first Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016 in New York City. Stefanie Sacks, MS, CNS, CDN is a Culinary Nutritionist, author,...