Tips for Living with CMT

Tips for Living with CMT

Living with Charcot-Marie-Tooth (CMT) disease can be a challenging journey. Symptoms can change over time and CMT patients must learn their strengths and limitations, and develop the support network they need throughout their personal journeys. Exercise &...
New Collaboration with the University of North Carolina  at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy

New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy

Gene therapy represents an exciting new frontier being explored for treating a number of diseases. Currently, gene therapy is being used in a clinical trial to treat one of the rare forms of inherited neuropathy (IN), giant axonal neuropathy (GAN). Because of the...
Neurotoxin Rx wallet card

Neurotoxin Rx wallet card

Individuals affected with neuropathic diseases, such as CMT, may be more vulnerable to the effects of certain medical conditions, stresses, and medications. A small number of medications are known to cause damage to nerves or cause neuropathy. These drugs can act as...
Tips on Managing Chronic Pain

Tips on Managing Chronic Pain

Did you know? More than 130 million Americans suffer from chronic pain. Chronic pain is a serious problem  that shouldn’t be ignored. If you are experiencing chronic pain, it’s important to discuss your physical and emotional symptoms related to your pain with all...
Top 10 Ways to Spread CMT Awareness

Top 10 Ways to Spread CMT Awareness

“You have what?” This is a common response when you tell someone you have Charcot-Marie-Tooth disease. We don’t just have CMT: we have a disease name awareness problem! How can we, together as a community of patients, caregivers, and healthcare professionals, work to...