We are delighted to announce that after volunteering for HNF for the past year Dr. Sean Ekins, Ph.D, D.Sc. will officially become our CSO responsible for overseeing the TRIAD program, directing our scientific advisory board, and communicating our research initiatives… Continue reading
The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical Research Network (RDCRN) contact registry are very different types of databases.
As a contact registry, the RDCRN collects limited data on patients with CMT. For example,… Continue reading
One Woman’s Success with Surgery
The only thing Sarah Clauss has given up because of Charcot-Marie-Tooth (CMT) is waterskiing. “I live on the lake so I attempted waterskiing but…,” jokes the 25 year old, Lake Wallenpaupack, Pennsylvania resident, “it wasn’t… Continue reading
Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration. Founder Chris Wodke created Team CMT in January 2011 specifically to raise funds and awareness. “When I started this team… Continue reading