Monthly Archives: February 2013

“Fighter Mom’s” Join Forces

Is it just coincidence, being in the right place at the right time, or is it synchronicity?  Synchronicity, as defined by Wikipedia: “The idea of synchronicity is that the conceptual relationship of minds, defined as the relationship between ideas, is intricately structured… Continue reading

NYC bike ride to highlight rare neurological disorder

By: Will Sloan  WoolwichObserver.com

Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.

“He found out last year, and I don’t… Continue reading

HNF Media Partner: World Orphan Drug Congress USA

In the world of rare disease and orphan drug research, it’s incredibly important for patient groups and industry to collaborate in order to best serve the patient community. With a widespread and niche patient base, pharma and biotech need to… Continue reading

School Outreach Program and Team CMT Kids

Arlene is going to Dallas!

HNF has added a new component to its successful School Outreach Program, aimed at deepening students’ understanding of disability as a difference that can be embraced as one part of a beautiful whole. Through… Continue reading

A Passionate Plate: White Wine Spaghetti

My name is Joy Aldrich. I have CMT and I’m a food blogger. I’m so thrilled to partner with Hereditary Neuropathy Foundation by writing this column where I hope to inspire you to enJOY making healthy and simple, yet elegant… Continue reading

Join Us for a Private Screening of Bernadette: January 29th in New York City

Bernadette captures the life of Bernadette Scarduzio and her challenges and triumphs living with CMT. CMT is the number one hereditary neuropathy in the world, affecting 1 in 2,500 people. CMT is a progressive debilitating neurological condition that is grossly… Continue reading

January 31, 2014 – Bridge/Brunch Fundraiser

Charity Card Party Brunch and Boutique

Please join us January 31, 2014 at 10:30 at the Broken Sound Country Club, Boca Raton Florida. Join Board Members Iris and Nat Adler for an exquisite brunch and card party to benefit the H.E.L.P… Continue reading

HNF Charity Partner for the MetroTex Charitable Trust Run For Fun Irving, Texas: Saturday May 3, 2014

logo[1]MetroTex Association of REALTORS Charitable Trust

DFW Get Fit 10K ~ 5K ~1M Fun Run

Date: Saturday May 3, 2014

Time: 9:00am – 12:00pm

Address: Campion Trails Campion Trails- TW Richardson Irving , TX75061

The Hereditary Neuropathy Foundation (HNF) has… Continue reading

HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014

 

HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised… Continue reading

TEAM CMT & CHRIS WODKE

chrispicture2Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.  Founder Chris Wodke created Team CMT in January 2011 specifically to raise funds and awareness.  “When I started this team… Continue reading

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