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HNF Signs Coalition Letter to Congress

HNF recently signed on to a coalition letter, which included 98 other organizations, to urge reconsideration of cuts to Medicaid/Medicare reimbursement for EDX procedures. tests which are critical for early diagnosis of Charcot-Marie-Tooth. It’s time to act! We need...
Running for Three Generations with CMT

Running for Three Generations with CMT

“I never liked running,” confesses Air Force Master Sargent Darrell Wright.  “It’s always been really hard for me because it is so boring and I didn’t have any drive.  But it is a mandatory part of physical training for the military so I had to do it.”  Wright, 41,...