From Narragansett to Quidnessett, Coventry to Providence, Warwick to Johnston, we met amazing students at every school. We even ventured into southern Massachusetts, to Braintree and Arlington.
Author Archive
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Meet Abby Ziff, Sales Director, Strategic Accounts, WebMD.
Meet Abby Ziff, Sales Director, Strategic Accounts, WebMD. CMT advocate who is passionate and dedicated to helping all of us in our mission to bring awareness and raise funds to cure CMT.
One Woman’s Success with Surgery
Read about how this CMT patient endured seven surgeries over the past dozen years to cope with the effects of CMT.
Meet your Team CMT Manager
I was diagnosed with CMT type 1a in August of 2010. I was relieved to put a name to symptoms I’ve had my whole life.
BERNADETTE SCARDUZIO: The Face of Charcot-Marie-Tooth Disease
In mid-October 2012, I had the opportunity to interview Bernadette Scarduzio (Bern). She is a lovely young woman who suffers from Charcot-Marie-Tooth
Assay Depot And Rare Genomics Institute Award Prizes To Study 26 Rare Diseases
SAN DIEGO and ST. LOUIS, Feb. 28, 2013 /PRNewswire/ — In recognition of Rare Disease Day, Assay Depot and Rare Genomics Institute (RGI) today announced the winners of the first ever Rare Disease Science Challenge:
School Outreach Program Update
HNF’s School Outreach Program is having its best year yet, with nearly fifty schools visited in 2012-2013
“Fighter Mom’s” Join Forces
Lori Sames and her husband Matt formed Hannah’s Hope Fund (HHF) following their youngest daughter’s diagnosis of Giant Axonal Neuropathy (GAN) in 2008. GAN is the most rare, and one of the most severe, forms of Inherited Neuropathy.
“Fighter Mom’s” Join Forces
Is it just coincidence, being in the right place at the right time, or is it synchronicity?...
NYC bike ride to highlight rare neurological disorder
Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.
School Outreach Program and Team CMT Kids
HNF has added a new component to its successful School Outreach Program, aimed at deepening students’ understanding of disability as a difference that can be embraced as one part of a beautiful whole.
Join Us for a Private Screening of Bernadette: January 29th in New York City
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
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