Posts regarding publicity for HNF and CMT

BERNADETTE SCARDUZIO: The Face of Charcot-Marie-Tooth Disease


The Face of Charcot-Marie-Tooth Disease


In mid-October 2012, I had the opportunity to interview Bernadette Scarduzio (Bern). She is a lovely young woman who suffers from Charcot-Marie-Tooth (CMT), an inherited disease… Continue reading

Join Us for a Private Screening of Bernadette: January 29th in New York City

Bernadette captures the life of Bernadette Scarduzio and her challenges and triumphs living with CMT. CMT is the number one hereditary neuropathy in the world, affecting 1 in 2,500 people. CMT is a progressive debilitating neurological condition that is grossly… Continue reading

Get the Latest Neurology News!

Thanks to the American Academy of Neurology (AAN), obtaining the latest information on neurological conditions is a cinch.  AAN’s magazine Neurology Now is available at  and offers an IPAD version as well as the option of a print… Continue reading

Film Release: Bernadette!

The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the completion of the film, “Bernadette.”  The documentary, depicting the true-life experience of now 33 year old Bernadette Scarduzio, had its first screening on May 24th at the Bryn… Continue reading

More Magazine features story on Charcot-Marie-Tooth

A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth.  From training for the New York marathon, to being diagnosed with cancer, through chemotherapy that brought out severe… Continue reading

Charcot-Marie-Tooth Awareness: In the News!

NBC10 in Philadelphia featured a story on Bernadette Scarduzio, one of HNF’s most prominent partners who is the subject of an upcoming documentary, Bernadette.  HNF sponsored the making of this documentary which is scheduled to be released in the… Continue reading

New York Times features Voice of CMT

The New York Times recently published an article about those living with Charcot-Marie-Tooth disease. Several members of the Hereditary Neuropathy Foundation were featured, including Allison Moore, Matt Downing and Bernadette Scarduzio.  Not only was there an article by Tara Parker-Pope… Continue reading

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