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The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical Research Network (RDCRN) contact registry are very different types of databases.  As a contact registry, the RDCRN collects limited data on patients with CMT.   For example, the...
Strawberry Pistachio Semifreddo

Strawberry Pistachio Semifreddo

One of my favorite summer-time treats is homemade ice cream. I remember watching my mom standing over a simmering pot of custard, surrounded by a pile of just peeled Michigan peaches. Meanwhile, my dad was getting the ice cream maker set-up out on the porch. That ice cream maker was quite an impressive machine: a wooden bucket containing a stainless steel bowl with motorized paddle.