Monthly Archives: September 2012

Camp CMT: Great Opportunity for Children with CMT!

The Hereditary Neuropathy Foundation (HNF) is excited to bring you the opportunity to make great memories next year in the summer of 2013.  Arrangements are being made to allow HNF to invite families impacted by Charcot-Marie-Tooth for a weekend, in… Continue reading

Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York

The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.  This amazing event begins at 11:00 AM at Hot Ryde Studio, Roslyn, NY with one-hour Spin/Yoga sessions.   Participants will enjoy a gift bag donated… Continue reading

Women’s Group Blog for CMT Awareness: The Fab Five

Clockwise is: Melissa, Michelle, Lenka, Nicole and EstherAbout this time last year, Melissa Arakaki of Spanish Fork, UT told us what prompted her to write to Utah Gov. Herbert on behalf of CMT Awareness Month. After connecting through Facebook with other people who have Charcot-Marie-Tooth (CMT), Melissa… Continue reading

Personal Profile: Wendy Lowe, Nurse: Trauma Surgical Intensive Care Unit

As a little girl, growing up with Charcot-Marie-Tooth Disease (CMT), Wendy Lowe spent a lot of time in the hospital.  It was such a kind, friendly environment, however, that Wendy felt very comfortable.  “I was there so much it was… Continue reading

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