Charcot Marie Tooth HNF

LCMT


WHAT IS CMT

Charcot-Marie-Tooth disease (CMT) is one of the most common inherited nerve disorders.



TYPES OF CMT

Description of the most prevalent types of CMT.


PATIENT RESOURCES

Helpful patient care resources for the treatment & management of CMT.


CMT UPDATES

Read about CMT updates and the latest in CMT research. Access our archives since 2014.



CMT CONNECT

Webinars. Empower, Educate, Connect.

CMT Research

=

TRIAD

Therapeutic Research In Accelerated Discovery TRIAD = Academia + Government + Industry
=

GRIN PATIENT REGISTRY

Why should you join GRIN?
It’s pretty simple…
We need YOU!

=

PEDIATRICS & CMT

CMT starts in infancy and lays dormant in the body until one day the symptoms start to appear.
Connect with us
LOur Impact


FDA

Providing real-world data to the FDA



CLINICAL TRIALS

Part of HNF's mission is to advance and support clinical research and trials for CMT.



PATIENT-FOCUSED RESEARCH

HNF has been conducting patient-focused research dating back to 2007.



EMERGING TECHNOLOGIES

Built to get you more shares and more followers.

GENETIC TESTING - CMT GENIE

Wish there was an easy guide for genetic testing? Now there is!



MOVEMENT IS MEDICINE™

The program offers adaptive free online classes for everyone!



FACES OF CMT

Thank you to the many faces and families who have chosen to share their stories and fundraise for their rare subtype of CMT.

LPartner with Us


INDUSTRY

Providing access to conduct Clinical Trials.



HCPs/CENTERS OF EXCELLENCE

HNF has a ​national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community.



RESEARCH FUNDING

HNF advances preclinical research as quickly as possible if it aligns with our key objectives
CONTACT US

About HNF

=

OUR STORY

Supporting patients and families with critical information to improve quality of life, and funding research that will lead to treatments and cures.
=

FOUNDATION LEADERSHIP

HNF Board of Directors, Staff and the TRIAD Council.

=

990's & ANNUAL REPORTS

We rely on your donations as we advance our mission to deliver results to our CMT family community.

LYou can help!


Join Team CMT

Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).



Ways to Give

HNF is a 501(c) 3 public charity enabling donors to support our mission safely. There are many ways to give.



Amazon Wishlist

Ultimate wishlist of CMT-friendly products on Amazon to make life with CMT easier.



CMT Shop

Donate While You Shop & Support CMT Awareness!

  • Follow
  • Follow
  • Follow
  • Follow
  • Follow


GRIN Registry

Join the Global Registry for Inherited Neuropathies (GRIN) and help develop drugs, gene therapies, and clinical trials for CMT and other Inherited Neuropathies! We need YOU!



Facebook Fundraiser

Create a Facebook Fundraiser to help raise funds for CMT research.
Make sure to choose, “Hereditary Neuropathy Foundation” as your non-profit.



Celebrate your birthday with a purpose

Start a CMT Birthday Fundraiser! It's a super easy and great way to spread awareness and support CMT Research. Share to your page and let others know what CMT research means to you!



Participate or Host an event

Participate in an HNF-hosted event or create your own. It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research.

Blog
Donate


Make A Donation Today

Make a donation to the Hereditary Neuropathy Foundation to help find treatments and cures for those living with Charcot-Marie-Tooth and Inherited Neuropathies. We are grateful for your generosity in supporting our mission!

 

Click here if the donation form does not display below.

Facebook
Twitter
LinkedIn
Pinterest
WhatsApp
Telegram
Buffer
Tumblr
Reddit
Email


M
Sitemap - CMT
  • What is CMT?
    • The Essential CMT Guide
  • Types of CMT
    • PMP22dup-CMT1A
    • PMP22del – Hereditary Neuropathy Pressure Palsy (HNPP)
    • MPZ – CMT1B
    • Mitofusin 2 (MFN2) – CMT2A
    • Ganglioside-induced differentiation-associated protein 1 (GDAP1) – CMT4A or 2k
    • Sorbitol Dehydrogenase Deficiency (SORD) – Type 2 CMT
    • CNTNAP1
    • GAN – Giant Axonal Neuropathy
    • GJB1 – CMT1X
    • C12orf65 or MTRFR deficiency – CMT6
    • TRPV4 – CMT2C
  • Patient Resources
    • Adaptive Driving
    • Bracing
    • Breathing
    • Canine Companions
    • Cannabis
    • Dating and Relationships
    • Emotional and Mental Health
    • Family Planning
    • Fashion and Products
    • Genetic Testing
    • Home Accessibility
    • Inclusive Employment
    • CMT Support Community
    • Legal Rights and Benefits
    • Surgery
    • Neurotoxic Drugs
    • Accessible Travel
    • Occupational Therapy
    • Pain
    • Podiatry
    • PT and Exercise
    • School and College
    • Tips and Hacks
    • Podcasts
    • Research and Clinical Trials
    • Newly Diagnosed
    • Nutrition
    • Symptom Checklist
  • CMT Updates
  • CMT Connect
  • CMT Research
    • TRIAD
      • Therapeutics
        • Rarebase
        • Miralinc Pharma
        • Pharnext Pharmaceuticals
        • Applied Therapeutics
      • Clinical Trial Readiness
        • Genome Medical
        • Matrix by Across HealthCare
        • Vitaccess / CMT&Me App
      • TRIAD Sponsored Research
        • University of Cambridge
        • Burke Institute
        • University of Miami
        • The Genesis Project
        • University of San Antonio Texas
        • Envigo
        • Wuxi Biologics
      • TRIAD Research Gifts
        • University of Helsinki
        • Veneto Institute of Molecular Medicine – V.I.M.M.
      • TRIAD Government – FDA & EMA
    • GRIN Patient Registry
    • Pediatrics & CMT
      • School Outreach Program
  • Follow
  • Follow
  • Follow
  • Follow
  • Follow
Follow our Inspire Community

Follow our CMT Support Community

EnglishSpanishFrenchDutchGermanGreekHebrewItalianPolishRomanian
Copyright © 2023 Hereditary Neuropathy Foundation | 1641 3rd Avenue #28K New York, NY 10128 | Powered by COMMbits

Connect with us | Sitemap

Join GRIN