Read about CMT updates and the latest in CMT research. Access archives since 2014.
Related Blog Posts
Hot off the Press: CMT Update
As we start the new year energized and ready to continue our mission of bringing treatments and cures for CMT, we have rebranded our CMT Update newsletter to feature our lead research programs including the GRIN patient registry, the HNF-funded research milestones...
Scavenger Hunt To Raise Funds For CMT 6
Join us on September 9th in Victor, NY for a Scavenger Hunt to help raise funds for CMT 6 research.
MightyMan Half Iron Distance Supports HNF
Join HNF at the MightyMan Half Iron Distance in Fort Pond, Montauk, NY October 1st.
Setting Sail For CMT: Manhattan Cruise Successfully Raises Research Funds
HNF cast off for our maiden voyage New York City sunset cruise to raise funds for CMT research.
Amazing Opportunity: AntiGravity Exercise Study in New York City!
Join this exclusive research study for people with CMT featuring the AlterG anti-gravity treadmill.
Natural History Study to Support CMT Research
The National Organization for Rare Diseases has awarded HNF funding to build a robust natural history study to support the second most common type of CMT called hereditary neuropathy pressure palsies (HNPP).
Q&A with Dave Washabaugh: TD Bank Five Boro Bike Tour Team Member
Q&A with Dave Washabaugh
Calling Everyone With CMT/IN
HNF has launched a new Patient-Reported Research Study to advance therapies for CMT and inherited neuropathies (IN) in an effort to collect comprehensive data for a better understanding of the disease.
New Collaboration with the University of North Carolina at Chapel Hill and The Jackson Laboratory Addresses Charcot-MarieTooth/Inherited Neuropathy Mutations Using Gene Therapy
HNF’s initial gene therapy work will focus on CMT type 6, which is caused by a recessive mutation in the C12orf65 gene and is currently no treatment.
Disease Awareness Problem
video of Robert’s keynote about CMT going largely unrecognized