Pain from multiple sources
Many patients with CMT experience chronic pain stemming from the disease state itself, as well as pain caused by the limited treatments currently available (i.e. surgery, improper use of braces and/or AFOs). Not to mention the emotional pain of living with chronic illness, especially for children and young adults navigating living with their disease.
Managing pain can be a challenge for both the patient and the health care provider. Keeping your HCP updated with your symptoms and the efficacy of your pain management program is essential for treating chronic pain successfully.
CMT GRIN Stats
Did you Know?
Of CMT Patients Experience Pain
Type of Pain Experienced
Muscle Cramps or Spasms in Handes / Forearms
Muscle Cramps or Spasms in Legs / Feet
Better Data = Better Treatments
Have your voice heard by CMT researchers!
HNF is on the forefront of pain research to support CMT patients.
Tell us about your experience
with Pain & CMT
How HNF has brought awareness to Pain & CMT
Chronic Pain Assessment: Patient Perspectives
Allison Moore, HNF Founder/CEO, along with her team, took action and led the HNF groundbreaking CMT pain initiative to help the community.
HNF’s Patient-Centered CMT/HNPP Pain Summit
It was an incredible meeting of people with hereditary neuropathies and their family members, caregivers, clinicians, researchers, funding agencies, payors, leading pain experts and pharma industry coming together to get an understanding of chronic pain in the CMT/HNPP community, including its impact on quality of life.
Ensuring Patient Access and Effective Drug Enforcement Act
Chronic Pain Patients Pinpoint the Need for Improved Methods to Assess Pain
Inspire™ CMT Community
Learn & share with others experiencing pain & CMT. Join the Inspire CMT Community today!
What are the key CMT milestones, markers, and interventional therapies to consider when raising a child with CMT?
Join us as we explore the power of Nutrition with CMT patient and Functional Medicine Coach Paul Fowler.
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
Improve blood flow and learn about this holistic approach to increase oxygen and decrease toxins.
On November 3, 2017, nearly 100 participants gathered in Boston for HNF’s Patient-Centered CMT/HNPP Pain Summit.
How to help with chronic pain