CMT Deploy

CMT Won’t Wait — Neither Should We.

 

 

CMT DEPLOY: Accelerating Treatments. Together.

Driving a global movement to fast-track treatments for Charcot-Marie-Tooth disease.

What Is CMT DEPLOY?

CMT DEPLOY is a bold, coordinated initiative designed to remove every roadblock in the way of treatments and cures for Charcot-Marie-Tooth disease.

From patient registries and clinical trial training to wearable tech and biomarker discovery—DEPLOY brings together patients, care partners, advocacy leaders, researchers, biopharma, and regulators under one shared mission.

 

Why It Matters

❌ Trials failing due to poor clinical trial design and/or missing data

✅ Clean, real-time data and tools built from CMT patient voices

❌ Patients excluded or underrepresented

✅ Inclusive design with real-world input & execution

Years lost waiting

✅ Progress measured in months, not decades

Misaligned, siloed, and unpublished studies & failed trials

✅ Aggregated & analyzed data for quality control, and regulatory alignment

“Even the best therapies can fail without clean data—jeopardizing breakthroughs and delaying progress.”

Allison Moore

Founder & CEO, HNF

What’s Next: Deploying With Urgency

Stage 1: Launch Consortium & Study

Stage 2: Create CMT Data Warehouse

Stage 3: Regulatory submission for tools + trial integration

Take Action and Deploy with Us!

The Problem

  • 160+ subtypes, but no FDA-approved treatments
  • Clinical trials fail without clean, consistent & longitudinal data
  • CMT affects nerves, muscles, mobility, breathing, and even mental healthMT affects
  • Every day without progress is a day lost for families

CMT DEPLOY Solution

  • CMT Biobank – 175+ biospecimens ready for research
  • Wearable Tech Pilot Studies – Real-world monitoring for better outcome measures
  • Certified Clinical Trial Training – Making sites “CMT Trial Ready”
  • Natural History Study – New comprehensive protocols co-created with leading CMT experts, C-Path & FDA alignment
  • Public-Private Partnership – Industry, regulators & patient organizations working together

Who’s Involved

  • Hereditary Neuropathy Foundation
  • Critical Path Institute – (C-Path)
  • CMT Deploy Team
  • BioSensics
  • Across Healthcare/Matrix
  • TRIAD academic, research, and industry partners
  • Global universities & patient leaders

Industry Partners

[Schedule a Call | Download Investor Prospectus]

Researchers & Clinicians

[Access Biobank | Get Trained]

CMT Advocates & Families

[Join GRIN | Donate Biospecimens | Share Your Story | Fundraise]

“Fueled by urgency and aligned with industry momentum, HNF doesn’t wait.”

Peter Loupos

Princeton Healthcare Strategies