CATEGORIES: GRIN Patient Registry | Living with CMT | Registry | Research | Research and Critical Trials

How Does CMT Affect You?

by Courtney | Sep 18, 2024 | 0 comments

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Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!

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HNF TRIAD Partner: A note to the CMT community from NMD Pharma

by Courtney | Feb 3, 2026 | CMT Type - CMT1A, CMT Type - CMT1B, CMT Type - CMT1X, CMT Type - CMT2A, Research, Research and Critical Trials | 0 Comments

With gratitude and respect: a note to the CMT community from NMD Pharma Dear members of the CMT...

Allison Moore Receives Award for Community Impact in Research

by Courtney | Jan 14, 2026 | Advocacy, Awareness, Featured, Gene Therapy, GRIN Patient Registry, Living with CMT, Research, Research and Critical Trials, TRIAD | 0 Comments

Muscular Dystrophy Association’s Legacy Awards Honor Innovators in Clinical and Scientific...

Biomarkers Can’t Wait

by Courtney | Dec 12, 2025 | Research, Webinars - Research and Clinical Trials | 0 Comments

Webinar Announcement: Biomarkers Can’t Wait – Accelerating the Path to CMT Treatments Biomarkers...

NMD Pharma: HNF TRIAD Partner Community Update on the SYNAPSE-CMT (NMD670) Clinical Trial

by Courtney | Oct 30, 2025 | Research | 0 Comments

NMD Pharma: HNF TRIAD Partner Community Update on the SYNAPSE-CMT (NMD670) Clinical Trial NMD...

HNF Partners with MDA to Empower the CMT Community

by Courtney | Oct 13, 2025 | Community, Featured, Living with CMT, Webinars - Bracing, Webinars - Newly Diagnosed, Webinars - Research and Clinical Trials | 0 Comments

HNF Partners with MDA for CMT Series The Hereditary Neuropathy Foundation (HNF) was honored to...

The Nerve to Cure Event, Columbia Missouri

by Courtney | Aug 26, 2025 | GRIN Patient Registry, Living with CMT, Patient-Focused Research, Registry, Research and Critical Trials | 0 Comments

Join us Saturday, October 4th from 12pm – 8pm October 4, 2025
The Nerve to Cure
CMT Social + Science Day with Evening Fundraiser Dinner

Big News for the CMT-SORD Community

by Courtney | Aug 18, 2025 | Applied Therapeutics, CMT Type - SORD Deficiency, Genetic Testing, Research and Critical Trials, TRIAD | 1 Comment

Big News for the CMT-SORD Community Updates from HNF’s TRIAD Partner, Applied Therapeutics In a...

GRIN is Changing the Game for CMT Research

by Courtney | Jul 14, 2025 | Featured, GRIN Patient Registry, Living with CMT, Registry, Research and Critical Trials | 1 Comment

6,000+ Strong Across 72 Countries — 2025 GRIN is Changing the Game for CMT Research! We’re...

First Humans Dosed in New CMT Drug Trial

by Courtney | Jul 14, 2025 | GRIN Patient Registry, Registry, Research and Critical Trials | 0 Comments

A New CMT Treatment Is One Step Closer Augustine Therapeutics Begins Phase I Trial of AGT‑100216...

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How Does CMT Affect You?

Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!

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