CATEGORIES: GRIN Patient Registry | Living with CMT | Registry | Research | Research and Critical Trials

How Does CMT Affect You?

by Courtney | Sep 18, 2024 | 0 comments

Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!

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Dr. Robert Baloh Answers Our Questions About iPS Cell Research

by Courtney | Jan 9, 2013 | Research | 2 Comments

Big news is happening on a cellular level at Cedars-Sinai Medical Center’s Regenerative Medicine Institute in Los Angeles, CA. Robert H. Baloh, MD PhD, Director of Neuromuscular Medicine, in conjunction with Patrick D. Lyden, MD Neurology Dept. Chair, and Clive Svendsen, PhD, Institute Director, are studying disorders that start in nerve cells.

Personal Profile: Wendy Lowe, Nurse: Trauma Surgical Intensive Care Unit

by Courtney | Sep 6, 2012 | Living with CMT | 5 Comments

As a little girl, growing up with Charcot-Marie-Tooth Disease (CMT), Wendy Lowe spent a lot of time in the hospital.

Get the Latest Neurology News!

by Courtney | Aug 15, 2012 | Research | 1 Comment

Thanks to the American Academy of Neurology (AAN), obtaining the latest information on neurological conditions is a cinch.

Stem Cell Line with Charcot-Marie-Tooth Available for Research

by Courtney | May 4, 2012 | Research | 22 Comments

Thanks to collaborative efforts of the University of Michigan Consortium for Stem Cell Therapies and molecular research scientists at Michigan-based Genesis Genetics, scientists are one step closer to understanding Charcot-Marie-Tooth disease.

Expert Q and A: Orthopedic Surgeon, Dr. Glenn Pfeffer

by Courtney | Mar 10, 2012 | Living with CMT, Surgery | 1 Comment

Learn more from orthopedic surgeon Glenn Pfeffer, MD about surgery and CMT patients.

More Magazine features story on Charcot-Marie-Tooth

by Courtney | Jan 27, 2012 | Living with CMT | 0 Comments

A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth.

HNF to fund promising research on Charcot-Marie-Tooth

by Courtney | Dec 18, 2011 | Faces of CMT - HELP Fund, Research | 6 Comments

HNF is committed to pursuing treatment and a cure for Charcot-Marie-Tooth disease, and we cannot fulfill this mission without your help.

CMT Research Update: HNF-Funded Projects

by Courtney | Dec 6, 2011 | Research | 1 Comment

We are currently funding two very important research projects, one for CMT type 1 and the other for CMT type 2A.

Be True to Yourself–Living with Charcot-Marie-Tooth

by Courtney | Nov 28, 2011 | Living with CMT | 4 Comments

This CMT patient has worked with thousands of CMT families and draws her knowledge from past and present experiences.

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How Does CMT Affect You?

Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!

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