CATEGORIES: Applied Therapeutics | CMT Type - SORD Deficiency | CMT-Connect | CMT-Connect Webinars | Featured

SORD Webinar – Part 2 – Clinical Trial Update

by Courtney | Oct 9, 2022 | 0 comments

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Passion for Movement. Power for Change.

by Courtney | Sep 18, 2025 | Featured, TCS New York City Marathon, Team CMT Members | 0 Comments

On Sunday, November 2, 2025, NMD Pharma will lace up their running shoes and take on the TCS New...

Big News for the CMT-SORD Community

by Courtney | Aug 18, 2025 | Applied Therapeutics, CMT Type - SORD Deficiency, Genetic Testing, Research and Critical Trials, TRIAD | 1 Comment

Big News for the CMT-SORD Community Updates from HNF’s TRIAD Partner, Applied Therapeutics In a...

HNF’s Inclusive Storytelling Program

by Courtney | Aug 7, 2025 | Webinars - School and College | 0 Comments

A Launch Event for HNF’s Inclusive Storytelling Program Tuesday, August 12 | 7:30-8:30pm Zoom...

CMT Gowns that Give

by Courtney | Jul 22, 2025 | Fashion and Products, Featured, Newly Diagnosed, Ways to Give | 0 Comments

CMT Gowns that Give Support Charcot-Marie-Tooth (CMT) Research by Donating a Dress! Thank you for...

GRIN is Changing the Game for CMT Research

by Courtney | Jul 14, 2025 | Featured, GRIN Patient Registry, Living with CMT, Registry, Research and Critical Trials | 1 Comment

6,000+ Strong Across 72 Countries — 2025 GRIN is Changing the Game for CMT Research! We’re...

CMT Summit Patient Voices

by Courtney | Jul 8, 2025 | Our Impact, Webinars - FEATURED | 0 Comments

At the 2025 CMT Summit and Retreat in Nashville, the Hereditary Neuropathy Foundation (HNF) placed...

Meet Children’s Author C.M. Harris

by Courtney | Jun 19, 2025 | Awareness, Featured, Pediatrics & CMT, School & College, School Outreach Program and Team CMT Kids | 0 Comments

C.M. Harris is an award-winning children’s author, disability advocate, and founder of Purple...

Thank You! Nashville CMT Summit + Retreat

by Courtney | May 21, 2025 | CMT Summit, Featured | 0 Comments

Thank You! Nashville CMT Summit + Retreat What a weekend! From the heart of Music City to the...

HNF Partner: CMT-SORD Clinical Trial Update

by Courtney | May 20, 2025 | Applied Therapeutics, CMT Type - CMT1A, CMT Type - CMT1B, CMT Type - CMT1X, CMT Type - CMT2A, Featured, Industry | 0 Comments

CMT-SORD Clinical Trial Update Promising Results from the INSPIRE Study on Govorestat! We’re...

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SORD Webinar – Part 2 – Clinical Trial Update

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