CMT Meet-Up September 30th at 1pm ET

by Courtney | Sep 7, 2023 | 0 comments

Meet virtually with host, Julie Stone & fellow CMTers from all over the world for a fun and interactive chat about all things CMT. Connect with valuable resources, experiences, tips, and new friendships! This will be a private and safe event (not recorded). Each CMT Meet-Up will focus on a topic that matters most to our community. For our first Meet-Up, we’ll be discussing CMT-related pain.

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Charcot–Marie–Tooth Disease Symptoms

by Courtney | Mar 7, 2023 | Awareness, Living with CMT, Newly Diagnosed, Webinars - Newly Diagnosed | 0 Comments

Charcot-Marie-Tooth disease is one of several hereditary neuropathies that affect the peripheral nervous system. CMT affects about 1 in every 2,500 people, making it one of the most common inherited neurological disorders worldwide.

She is at it, again! Jenny Decker’s “Just a Lap” circumnavigating the globe

by Courtney | Feb 23, 2023 | Faces of CMT, Featured, Living with CMT | 0 Comments

She is at it, again! Jenny Decker’s “Just a Lap” circumnavigating the globe In 2016, Jenny kayaked...

The Key Role CMT Patients Play in Research

by Courtney | Sep 16, 2022 | GRIN Patient Registry, Living with CMT, Research and Critical Trials, Webinars - Research and Clinical Trials | 0 Comments

Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In addition, as GRIN grows, we gain greater insights from you as patients to help accelerate therapies for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies.

Moving Away From Perfectionism

by Estela Lugo | Jun 8, 2022 | Living with CMT | 0 Comments

The American Psychological Association (APA) understands perfectionism as the tendency to expect flawless performance from others or oneself over what the situation requires.

Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT

by Estela Lugo | Oct 19, 2021 | Awareness, Featured, Living with CMT | 10 Comments

Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine contacted HNF for more information about CMT. HNF Founder, Allison Moore was quoted in the article:

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CMT Meet-Up September 30th at 1pm ET

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