CMT Meet-Up September 30th at 1pm ET

by Courtney | Sep 7, 2023 | 0 comments

Meet virtually with host, Julie Stone & fellow CMTers from all over the world for a fun and interactive chat about all things CMT. Connect with valuable resources, experiences, tips, and new friendships! This will be a private and safe event (not recorded). Each CMT Meet-Up will focus on a topic that matters most to our community. For our first Meet-Up, we’ll be discussing CMT-related pain.

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CMT & Finances

by Courtney | Apr 11, 2018 | CMT-Connect, Legal Rights and Benefits, Living with CMT, Webinars - Legal Rights and Benefits | 0 Comments

Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services.

CMT Careers: No Piece Of Cake

by Courtney | Mar 31, 2018 | Living with CMT | 7 Comments

Sometimes physical challenges can dictate job and career paths.

Breathing Problems? What Do They Mean, Breathing Problems?

by Courtney | Mar 25, 2018 | Breathing, Living with CMT | 11 Comments

Though CMT is rarely fatal, respiratory complications are one of the ways it’s possible to die from CMT.

Q&A with Dakota Reilly Impact of AlterG on Charcot-Marie-Tooth

by Courtney | Aug 5, 2017 | Living with CMT | 0 Comments

Learn how this CMT1A patient uses the AlterG treadmill to manage her CMT symptoms.

Tips for Living with CMT

by Courtney | Apr 25, 2017 | Living with CMT | 5 Comments

Living with CMT can be a challenging journey. Here are some helpful tips.

RV Tips and Advice: Rick Cole the CMTrv’er

by Courtney | Mar 30, 2017 | Living with CMT | 0 Comments

Thoughts and tips for people considering, or may want to consider, going RV, either part-time or full-time

Tips on Managing Chronic Pain

by Courtney | Feb 14, 2017 | Living with CMT, Pain | 5 Comments

How to help with chronic pain

Rick’s RV Road Trip to Spread Awareness for Charcot-Marie-Tooth

by Courtney | Nov 22, 2016 | Living with CMT | 0 Comments

On December 1, 2016, Richard Cole (Rick) will be starting life on the road in an RV–and his road-trip will help spread awareness for Charcot-Marie-Tooth (CMT).

Q&A with CMTRV’er Richard Cole

by Courtney | Nov 8, 2016 | Living with CMT | 11 Comments

RVing blog Q&A

Headaches and Charcot-Marie-Tooth

by Courtney | Jun 1, 2016 | Living with CMT | 12 Comments

One topic that has been addressed is headaches and CMT. Some CMT patients have reported tension headaches from off-balance gait, scoliosis, and neck & spine arthritis.

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CMT Meet-Up September 30th at 1pm ET

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