CMT Meet-Up September 30th at 1pm ET

by Courtney | Sep 7, 2023 | 0 comments

Meet virtually with host, Julie Stone & fellow CMTers from all over the world for a fun and interactive chat about all things CMT. Connect with valuable resources, experiences, tips, and new friendships! This will be a private and safe event (not recorded). Each CMT Meet-Up will focus on a topic that matters most to our community. For our first Meet-Up, we’ll be discussing CMT-related pain.

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Joy Perry and The Christmas Bow

by Robert Moore | Oct 5, 2020 | Living with CMT | 10 Comments

Joy Perry, CMT patient cast in a new Hallmark Christmas movie “The Christmas Bow.

Meditation for CMT is a No-Brainer

by Estela Lugo | Sep 22, 2020 | Living with CMT | 0 Comments

Can meditation benefit Charcot-Marie-Tooth symptoms? The overwhelming research and evidence points to a resounding YES… Here are 7 reasons why!

Ann Taylor Jones – Covid Nurse Working on the Front Lines

by Estela Lugo | Sep 15, 2020 | Living with CMT | 0 Comments

Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.

NEW CMT Stationery by Designer, Dakota Reilly – Blue Bear

by Estela Lugo | Aug 31, 2020 | Living with CMT | 0 Comments

Dakota Reilly launched a line of CMT related cards, stickers, and pins for CMT Awareness Month.

Teen Survey

by Estela Lugo | Aug 13, 2020 | Living with CMT | 0 Comments

Teen CMT survey

HEREDITARY NEUROPATHY FOUNDATION (HNF) IS HERE FOR YOU DURING THIS TIME OF UNCERTAINTY

by Estela Lugo | Jun 22, 2020 | Living with CMT | 1 Comment

HNF team has been working tirelessly to produce content and programs to help the CMT Community during this time of uncertainty.

Painting By Mouth – Kaileen Selig

by Estela Lugo | Jun 5, 2020 | Living with CMT | 0 Comments

CMT doesn’t stop artist, Kaileen Selig from painting beautiful pieces using her mouth.

Spinning 4 CMT: My CMT Story

by Estela Lugo | Apr 12, 2020 | Living with CMT | 0 Comments

Marc Daigle’s CMT story

Rishi Sharma CMT 2A Wheelchair Rugby

by Estela Lugo | Apr 11, 2020 | Living with CMT | 0 Comments

Rishi’s CMT story

Rules for Wheelchair Rugby

by Estela Lugo | Mar 3, 2020 | Living with CMT | 0 Comments

Rules and regulations of Wheelchair Rugby

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CMT Meet-Up September 30th at 1pm ET

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