CMT Meet-Up September 30th at 1pm ET

by Courtney | Sep 7, 2023 | 0 comments

Meet virtually with host, Julie Stone & fellow CMTers from all over the world for a fun and interactive chat about all things CMT. Connect with valuable resources, experiences, tips, and new friendships! This will be a private and safe event (not recorded). Each CMT Meet-Up will focus on a topic that matters most to our community. For our first Meet-Up, we’ll be discussing CMT-related pain.

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CMT Self Care: A 30-Day Journal

by Courtney | Aug 21, 2024 | Emotional and Mental Health, Living with CMT | 0 Comments

CMT Self-Care: A 30-Day Journey to Empowerment and Well-Being Living with Charcot-Marie-Tooth...

Unstoppable Skyler Fisher: Triumphing Across Continents with CMT

by Courtney | Feb 27, 2024 | Featured, Living with CMT, Team CMT Members | 1 Comment

In the fast-paced world of para triathlons, one name stands out among the rest: Skyler Fisher, a dynamic 19-year-old powerhouse representing Team USA.

HNF Launches Groundbreaking ‘ABCs of CMT Pain Management’ Guide

by Courtney | Jan 19, 2024 | Featured, Living with CMT, Pain, Pediatrics & CMT, Webinars - Pain | 0 Comments

"ABCs of CMT Pain Management" is now on Amazon! The Hereditary Neuropathy Foundation is thrilled...

Pediatric CMT Natural History Study Enrollment Opening at Two Centers of Excellence

by Courtney | Aug 31, 2023 | Centers of Excellence, Clinical Trials, Featured, GRIN Patient Registry, Living with CMT, Pediatrics & CMT, Registry, Research, Research and Critical Trials | 0 Comments

Pediatric CMT Natural History Study enhancement to their Charcot-Marie-Tooth (CMT) and Inherited Neuropathies (IN) patient registry, Global Registry for Inherited Neuropathies (GRIN).

HNF Awarded 2023 Health Equity in RARE Impact Grant

by Courtney | May 15, 2023 | Living with CMT, Registry | 0 Comments

HNF Awarded 2023 Health Equity in RARE Impact Grant For Spanish CMT PSA Awareness Campaign with Diagnosis & Patient Care Toolkit. The Hereditary Neuropathy Foundation is thrilled to announce that we are a recipient of the Global Genes Health Equity in RARE Impact Grant!

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CMT Meet-Up September 30th at 1pm ET

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