Could CMT’s Awareness Campaign Begin with CMT (Country Music Television)?
Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine contacted HNF for more information about CMT. HNF Founder, Allison Moore was quoted in the article:
But there is hope for the future of the disease. “As a fellow CMT patient, I feel complete empathy for Alan Jackson and his struggles living with this disease for over a decade,” says Allison Moore, founder and CEO of the Hereditary Neuropathy Foundation. “Today we stand proudly on the forefront of the first potential drug to treat CMT. We’ve never been more hopeful and excited to help the millions of CMT families like Alan Jackson’s live long and healthy lives.”
Read the full article here
There was an impressive and supportive social media outreach by people living with CMT thanking Alan Jackson for helping raise awareness of this disease with an awareness problem. The funny name and rare nature of CMT have been cited as potential reasons for the lack of knowledge about the disease, and many have been waiting for a well-known personality to bring awareness similar to the way Michael J. Fox has for Parkinson’s, and Lou Gehrig did for ALS. Isn’t it interesting that CMT’s awareness campaign may have just gotten its kick-start from a CMT star?!
This is an exciting time with lots of opportunities to support CMT research as more and more biotech and pharma companies are entering the marketplace to bring therapeutics to market to treat the many different types of CMT. Please consider making a donation to support research for your type of CMT today. Donate
Credit: Prevention By: Arielle Weg
My grandma has Lou Gehrig’s disease, she is about 75 years old it was diagnosed 2 years ago. Right now it’s getting more difficult to live for her, because of stiff muscles she can’t even move. Riluzole and Edaravone medicines are given, but won”t give much relief. She can”t eat food without choking. I thought this might be the last stage and the medications she was given did not help at all, so I started to do alot of research on natural treatments, I was introduced to Health Natural Centre and their ALS Herbal Protocol. She started on the ALS/MND Treatment last year, her symptoms gradually diminished including her vocal cord spasm, Body Weakness and Difficulty with swallowing. Reach them at healthnaturalcentre.org , She is getting active again since starting this treatment, she is able to walk again ( down the street and back )she have also resumed exercising to strengthen muscles!! God Bless all ALS Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.
My grandma who has been Lou Gehrig’s disease for 2 years at the age of 75 had all his symptoms reversed with a herbal medicine from healthnaturalcentre . org after undergoing their herbal treatment plan. God Bless all ALS Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.
So sorry, Love you, ALAN !
I do not suffer with CMT , but was very convinced that I had Parkinson’s Disease. As it turned out, I was mistaken and do not have PD. Thank God, for he is good. I just wanted to say for those who do suffer and live with C MT or any of these types of diseases, Heart goes out to you. I had never heard of CMT until my Beloved Alan Jackson has came out about his now diagnosis of the disease. All of you have a great warrior and fighter on your side. I pray that a treatment and a cure will be found for you. Alan and his wife Denise are wonderful, caring and Christian people who will be a voice for all of you. Blessings and a Blessed Journey on your road to an end of CMT.
I am newly diagnosed with neuropathy And I am interested in treatments and breakthroughs
Pray you get well soon alan my prayers are with you
At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain or tremors. family doctor started me on KycuyuHealth Clinic Parkinson’s Disease Herbal mixture, 2 months into treatment I improved dramatically. At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain or tremors. visit kycuyuhealthclinic . c o m