How to get genetic Testing: The CMT Genie

by Courtney | Sep 10, 2022 | 0 comments

Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there. HNF’s CMT Genie is designed to assist you and your healthcare provider in determining what the best option is for you! Learn how HNF has teamed up with Genome Medical to provide virtual genetic counseling and fast, affordable testing right from your own home! LIVE Q&A with Genome Medical & Estela Lugo.

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HNF Partners with InformedDNA® on CMT Genie Project

by Courtney | Jan 10, 2024 | Community, Genetic Testing, GRIN Patient Registry, Our Impact, Registry, The CMT Genie | 0 Comments

a patient-initiated at-home genetic testing program, providing faster and more equitable access to critical genetic care for the CMT community and their health care providers.

Pediatric CMT Natural History Study Enrollment Opening at Two Centers of Excellence

by Courtney | Aug 31, 2023 | Centers of Excellence, Clinical Trials, Featured, GRIN Patient Registry, Living with CMT, Pediatrics & CMT, Registry, Research, Research and Critical Trials | 0 Comments

Pediatric CMT Natural History Study enhancement to their Charcot-Marie-Tooth (CMT) and Inherited Neuropathies (IN) patient registry, Global Registry for Inherited Neuropathies (GRIN).

CMT Awareness Month 2023 Hope. Courage. Action.

by Courtney | Aug 30, 2023 | Featured, Newly Diagnosed | 0 Comments

This year, HNF is spotlighting 3 Key Pillars vital to CMT Awareness & Research success.
We invite you to choose from each pillar throughout this September to drive Impact That Matters!

CMT Presents: Cohost a CMT Presentation with HNF!

by Courtney | Aug 29, 2023 | Awareness, CMT-Connect, Community, Newly Diagnosed, Special Events, Ways to Give, Webinars - Newly Diagnosed | 0 Comments

HNF is proud to present “CMT Presents,” a virtual presentation series designed to spread awareness in the communities, companies, and groups closest to you!

First Ever Biorepository For Charcot-Marie-Tooth, HNF Launches The CMT Biobank

by Courtney | Aug 22, 2023 | Featured, GRIN Patient Registry, Registry, Research | 0 Comments

The Hereditary Neuropathy Foundation (HNF), an advocacy and research 501c3 non-profit, today...

DTx Pharma Receives FDA Orphan Drug Designation for DTx-1252 for the Treatment of Charcot-Marie-Tooth Disease Type 1A (CMT1A)

by Courtney | Aug 2, 2023 | Clinical Trials, CMT Type - CMT1A, Featured, Industry, Research, Research and Critical Trials | 0 Comments

Dtx today announced that the FDA has granted Orphan Drug Designation to DTx-1252, an investigational FALCON small interfering RNA (siRNA) therapeutic for the treatment of Charcot-Marie-Tooth Disease Type 1A (CMT1A).

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How to get genetic Testing: The CMT Genie

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