How to get genetic Testing: The CMT Genie

by Courtney | Sep 10, 2022 | 0 comments

Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there. HNF’s CMT Genie is designed to assist you and your healthcare provider in determining what the best option is for you! Learn how HNF has teamed up with Genome Medical to provide virtual genetic counseling and fast, affordable testing right from your own home! LIVE Q&A with Genome Medical & Estela Lugo.

Learn more on this topic

Know Your Disability Rights

by Courtney | Jan 12, 2022 | Inclusive Employment, Legal Rights and Benefits, Webinars - Inclusive Employment, Webinars - Legal Rights and Benefits | 0 Comments

What are our disability rights at work, school & society in general? When it comes to CMT, learning our rights can seem like a daunting and intimidating endeavor.

CMT & Canine Companions

by Courtney | Jan 11, 2022 | Canine Companions, CMT-Connect, Webinars - Canine Companions | 0 Comments

Learn about how Canine Companions paired these best friends together and how Marvin makes Diana’s life easier and sweeter.

CMT Family Planning Webinar – Part 1: IVF & CMT

by Estela Lugo | Oct 19, 2021 | CMT-Connect, Family Planning, Webinars - Family Planning | 0 Comments

When it comes to family planning & CMT, there are ever-growing concerns, questions, and scientific developments that can seem overwhelming and have us questioning, “Where do we start?”. The Hereditary Neuropathy Foundation aims to shed light on this vast topic with a 3-Part Family Planning Series.

Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT

by Estela Lugo | Oct 19, 2021 | Awareness, Featured, Living with CMT | 8 Comments

Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine contacted HNF for more information about CMT. HNF Founder, Allison Moore was quoted in the article:

Accessible College: NEW CMT-Connect Webinar!

by Estela Lugo | Aug 12, 2021 | CMT-Connect, CMT-Connect Webinars, School & College, Webinars - School and College | 1 Comment

HNF is proud to have teamed up with Accessible College to help families and individuals with an introduction to the skills and tools needed to ensure a successful transition to and through higher education.

#100outof100

by Courtney | Jun 10, 2021 | Dating and Relationships, Webinars - Dating and Relationships | 0 Comments

Dr. Phil may think that 100 out of 100 relationships involving caregiving fail, but we, and many more in our community, are proof he’s wrong!

Cannabis & CBD for CMT

by Courtney | Mar 11, 2021 | Cannabis, CMT-Connect | 0 Comments

Join our experts, Meg D’Elia & Brian Piper, PhD along with CMT patient panelists as they provide research, insight and personal experience on the topic of medical marijuana.

Free CMT Genetic Testing for a Common Axonal type of CMT to Prepare for Clinical Trial

by Estela Lugo | Jan 18, 2021 | Applied Therapeutics, CMT Type - SORD Deficiency, Genetic Testing | 2 Comments

A new type of Charcot-Marie-Tooth (CMT) has recently been identified caused by mutations in the SORD gene.

Kundalini Yoga Webinar

by Courtney | Jan 13, 2021 | CMT-Connect, CMT-Connect Webinars, Movement Is Medicine, PT and Exercise, Webinars - PT and Exercise | 0 Comments

Kundalini yoga is a holistic yoga that incorporates repetitive physical movement and sometimes static postures timed with breath-work, chanting, meditation, and relaxation.

Active Hands

by Courtney | Jan 11, 2021 | Home Accessibility, PT and Exercise, Tips and Hacks, Webinars - Bracing, Webinars - FEATURED, Webinars - Home Accessibility, Webinars - PT and Exercise | 0 Comments

Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.

WHAT IS CMT

TYPES OF CMT

PATIENT RESOURCES

CMT UPDATES

CMT CONNECT

CMT Research

TRIAD

GRIN PATIENT REGISTRY

PEDIATRICS & CMT

FDA

CLINICAL TRIALS

PATIENT-FOCUSED RESEARCH

EMERGING TECHNOLOGIES

GENETIC TESTING - CMT GENIE

MOVEMENT IS MEDICINE™

FACES OF CMT

INDUSTRY

HCPs/CENTERS OF EXCELLENCE

RESEARCH FUNDING

About HNF

OUR STORY

FOUNDATION LEADERSHIP

990's & ANNUAL REPORTS

Join Team CMT

Ways to Give

Amazon Wishlist

CMT Shop

GRIN Registry

Facebook Fundraiser

Celebrate your birthday with a purpose

Participate or Host an event

Make A Donation Today

Click here if the donation form does not display below.

How to get genetic Testing: The CMT Genie

Learn more on this topic

Related Blog Posts

Join the conversation

Leave a Comment

0 Comments

Submit a Comment Cancel reply

Newsletter

Join for notifications on events, campaigns, & news

Success!