Schedule of Events – Saturday, October 4, 2025
The Nerve to Cure
CMT Social + Science Day with Evening Fundraiser Dinner
NextGen Precision Health: 1030 Hitt Street Columbia, MO 65211
Hosted by Dr. Ryan Castoro, D.O., M.S. & the Hereditary Neuropathy Foundation
Assistant Professor of Physical Medicine and Rehabilitation & Neuromuscular Medicine
University of Missouri’s NextGen Precision Health
Daytime Agenda
12:00 – 12:30 PM | Check-In & pick up your welcome packet and event schedule.
12:30 – 12:40 PM | Event Orientation & Booth Instructions ~ Overview of research participation opportunities, booth locations, and blood donation process.
12:40 – 12:50 PM | Opening Remarks Welcome ~ Ryan Castoro, D.O & Allison Moore, HNF, CEO
12:50 – 1:00 PM | Genetics and CMT: Dr. Constatine Farmakadis M.D. University of Kansas Medical Center
1:00 – 1:10 PM | Dysfunctional Myelin in CMT1A and HNPP: Kathyrn Moss Ph.D. NextGen Precision Health, University of Missouri
1:10 -1:20 PM | Models of CMT: Dr. Curtis Nutter Ph.D. NextGen Precision Health, University of Missouri
1:20 – 1:30 PM | Clinical Outcome Measure in CMT Trials: Dr. Kris Kelly PT, DPT, NCS, CPT Nextgen Precision Health, University of Missouri
1:30 – 2:45 PM | Explore the Event Zones
CMT Resource Booths – Vendors/Booths, genetic counseling, bracing/AFO solutions, PT/OT strategies, surgical insights, adaptive tools & daily living gadgets.
Research in Motion Zone – Learn about ongoing clinical trials, donate blood to the CMT Biobank, enroll in the CMT DEPLOY Natural History Study.
2:45 – 3:00 PM | Thank You & Transition – Closing announcements for the afternoon segment.
3:00 – 5:00 PM | CMT Social Community Meet-Up (Atkins Seminar Room) Exclusive to individuals living with CMT and their families.
Includes:
Kids Corner – OT-inspired sensory play, adaptive books/toys/games, adaptive shoe try-ons.
Parent Connection Circle – Connect with fellow caregivers, speak with medical and emotional health experts, learn advocacy tools for school.
CMT Library Lounge – Resources on pain, fatigue, and mental wellness; self-care and relationship guides; children’s and teen books about CMT.
1-on-1 CMT Expert Consultations: Meet with bracing, surgery, PT & OT health providers for free evaluations and care.
Evening Agenda 5:00pm – 8:00pm (There is a charge to attend the dinner)
5:00 – 6:00 PM Cocktail Hour
6:00 – 6:30 PM Dinner Served
6:30 – 7:00 PM HNF Presentation
7:00 – 7:30 PM NextGen Presentation
7:30 – 8:00 PM Dessert, thank you
*For on-site research to make sure everyone can participate we will offer research appointments on Friday, October 3rd from 8:00am – 6pm.
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