CMT Meet-Up September 30th at 1pm ET

by Courtney | Sep 7, 2023 | 0 comments

Meet virtually with host, Julie Stone & fellow CMTers from all over the world for a fun and interactive chat about all things CMT. Connect with valuable resources, experiences, tips, and new friendships! This will be a private and safe event (not recorded). Each CMT Meet-Up will focus on a topic that matters most to our community. For our first Meet-Up, we’ll be discussing CMT-related pain.

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Rick’s RV Road Trip to Spread Awareness for Charcot-Marie-Tooth

by Courtney | Nov 22, 2016 | Living with CMT | 0 Comments

On December 1, 2016, Richard Cole (Rick) will be starting life on the road in an RV–and his road-trip will help spread awareness for Charcot-Marie-Tooth (CMT).

Q&A with CMTRV’er Richard Cole

by Courtney | Nov 8, 2016 | Living with CMT | 11 Comments

RVing blog Q&A

Headaches and Charcot-Marie-Tooth

by Courtney | Jun 1, 2016 | Living with CMT | 12 Comments

One topic that has been addressed is headaches and CMT. Some CMT patients have reported tension headaches from off-balance gait, scoliosis, and neck & spine arthritis.

How To Stay Sun Safe Year Round

by Courtney | May 26, 2016 | Living with CMT | 0 Comments

The cumulative damage caused by exposure to the sun’s harmful ultraviolet rays (UV) can lead to premature skin aging, damage the eyes and surrounding skin, and raise your risk of skin cancer.

Radio interview with Jenny Decker

by Courtney | May 9, 2016 | Living with CMT | 0 Comments

Radio interview from last week with Jenny Decker about how she is kayaking around the Big Island to raise awareness and funds for a Charcot-Marie-Tooth.

Cholesterol And Your Health

by Courtney | Apr 13, 2016 | Living with CMT, Nutrition | 2 Comments

About one in every eight American adults have high levels of total cholesterol. Does Charcot-Marie-Tooth contribute to high cholesterol.

Meet Molly: A True CMT Warrior

by Courtney | Apr 6, 2016 | Bike New York, CMT Update, Living with CMT, Team CMT Members | 2 Comments

Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.

Symptoms & Charcot-Marie-Tooth Disease

by Courtney | Jan 7, 2016 | Living with CMT | 1 Comment

Kuddos to our Inspire member HMBSusan! She initiated this important conversation in our Inspire Support Community. When HNF partnered with the Inspire Community, our mission was to encourage conversations just like this one.

Living with Charcot-Marie-Tooth: Leg Braces & Air Travel

by Courtney | Dec 17, 2015 | Living with CMT | 2 Comments

CMTers who use leg braces share their tips and best advice for air travel in our CMT Inspire Community.

We’re Here To Help: The Hereditary Neuropathy Foundation’s Healthcare Provider Directory

by Courtney | Dec 14, 2015 | Living with CMT | 14 Comments

The Hereditary Neuropathy Foundation is thrilled to announce the launch of the first online health care provider directory that has ever been offered to this community to include comprehensive testing to certify health care professionals (HCPs).

WHAT IS CMT

TYPES OF CMT

PATIENT RESOURCES

CMT UPDATES

CMT CONNECT

CMT Research

TRIAD

GRIN PATIENT REGISTRY

PEDIATRICS & CMT

WHAT IS MITO

TYPES OF MITOS

MITO Faces

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TRIAD - Mito

GRIN PATIENT REGISTRY

PEDIATRICS & MITO CMT

FDA

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PATIENT-FOCUSED RESEARCH

EMERGING TECHNOLOGIES

GENETIC TESTING - CMT GENIE

MOVEMENT IS MEDICINE™

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INDUSTRY

HCPs/CENTERS OF EXCELLENCE

RESEARCH FUNDING

About HNF

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Amazon Wishlist

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GRIN Registry

Facebook Fundraiser

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CMT Meet-Up September 30th at 1pm ET

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