The New York Times recently published an article about those living with Charcot-Marie-Tooth disease. Several members of the Hereditary Neuropathy Foundation were featured, including Allison Moore, Matt Downing and Bernadette Scarduzio. Not only was there an article by Tara Parker-Pope, but an interactive feature allows us to “listen to the voices of CMT.” Listen now!
Traveling With A Disability
We interviewed Bernadette to ask her to share her tips and tricks for traveling with a disability.
my mother and all of her sisters had CMT as of now I am not showing any signs of the disease, but I do have a sister that is.
I was just sitting at my computor and typed in”CMT RESEARCH” and was totally blown away by the information provided and the number of people who are affected by CMT…I have CMT but only in my lower extremeties, my daughter has the same problem and my grandson also has CMT. I have learned to live with the loss of strength and balance by having an orthotic fitted to fit under my feet and extend up my legs just below my knee which allows me to function with the use of two wrist crutches which compensates for the lack of balance…I am hoping to find someone near me in the midwest to communicate with to discuss our common problem. I would appreciate any help you can provide in finding some one who has the same problem…….Louie Cowan of Cherry Valley, Illinois..